Does anyone suffer from HHT or Osler Weber Rendu? I am writing a paper on it for class and I really need help!

Question

I am writing a research paper in my anatomy class and I would really like some personal experience stories to include. If you or someone you know suffers from this disorder, please let me know so we can chat a bit. This paper is due on Tuesday morning so I am not looking for any majorly in depth thing, just some personal stories, thoughts, and/or feelings about it. Thanks so much for your help!!!

Answer 1

you can try www.familydoctor.org or mayoclinic.com, these websites may have some patient support groups there and you could get personal information, good luck