Anyone with lupus or shogun's disease with advice?

Question

I just learned my best friend has been diagnosed with these diseases. She is having the butterfly rash, joint pain, weakness, and shortness of breath on exertion. This all seems to have come about so suddenly. She's still young (39), although I understand that's a typical age for such diseases to appear.

Initially she was only having the rash sometimes when she got in the sun....suddenly everything started changing.

Since doctors are more geared to suppressing symptoms once they occur, rather than identifying the cause or preventing outbreaks, I wondered if anyone has some good advice about diet, sunscreen, or anything which might help her manage this a little better?

I've read that artificial sweeteners can mimic or magnify diseases like this, but that's about all I know so far. Any help or advice appreciated!

Answer 1

support for your friend will be needed the most! helping her with little things so she doesn't get fatigue. lupus is tricky. flares can come on suddenly and cause joint pain and fatigue.

the diet question has many opinions as related to lupus.
(i have had sucess with avoiding certain foods and creating a balanced diet for me that seems to help with flares but this is not true of others.)
depending on the kind of lupus your friend has, diet, as in eating healthy and avoiding junk,is always good.
if lupus is affecting her organs she will need to watch diet closely and tailor the diet for maximum health of the organ affected.(.if her kidneys are involved -low sodium..) medication can have side affects that diet may need to be changed as well.but a doctor will be able to tell her if she needs low sodium or low carbs etc..

most sun sensitive lupus suffers use 40+ sunscreen and have to cover up as well.

low impact or stretching exercises help..yoga or classes in water aerobics can reduce pain and help to keep muscles flexible.

there are many on line groups which can help with advice and links concerning your friend's diseases.

knowledge is power.

Answer 2

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Answer 3

I understand your frustration with Dr's trying to treat the symptoms and not the real problem that is causing the symptoms. Have you your your friend tried anything in the holistic field? For example Iridology? I have found Iridology to be very accurate at finding the source of my symptoms. However, it's very important that you use an Iridologist with experience. There are a few that will do it via email with a digital photo of your eyes. The one I have found and trust and the readings have been DEAD accurate is listed below. Just go under the "CONTACT US" link to get the info. Good Luck to you and your friend.

Answer 4

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Answer 5

I've written an article on Fibromyalgia, which is quite similar to lupus and I give suggestions on how to manage it. I've enclosed the link for you to read. I've also written a brief article on how to eat correctly For when you are sick , which I'm enclosing here.

Your friend should use sunscreen all of the time. A dermatologist can recommend one that will not cause more rashes.

Twelve Steps to Healthy Eating

1. Eat lots of cooked vegetables including green leafy vegetables.
2. Eat mostly cooked and warm foods where possible (with occasional salads). Use foods prepared within 24 hours when possible.
3. Eat meals on a regular schedule where possible.
4. Eat fruit on occasion only and separate from meals when possible. Slightly more fruit in the warmer months and very little in the colder months.
5. Gradually cut back on dairy or cut it out entirely. Try to limit dairy (eventually) to occasional yogurt or kefir from a natural food store. (Unhomgenized milk is preferable when used.)
6. Eat miso soup several times per week and include the occasional use of other traditionally fermented dishes.
7. Gradually eliminate foods with additives, preservatives, caffeinated products, coloring, MSG/hydrolyzed proteins, artificial sweeteners (aspartame, neotame, acesulfame-k, sucralose, etc.), and chemical names in the ingredient list that you are not sure of. Shopping regularly at a natural foods store will make it much easier to find such products. The occasional "treat" can be replaced with healthier "treats" from a natural food store.
8. Determine with some experimentation what balance of vegetables and sea vegetables, whole grains, fish/fowl, legumes, fruits, nuts, seeds, juices, herbal teas/coffee substitutes/spring water, and treats/snacks works best for you. You may decide to regularly take a concentrated food supplement or individual supplements (e.g., magnesium, calcium, B Vitamins) until your health and nutrition plan improves. Use health food store natural supplements without additives sweeteners, fillers, etc.
9. Shop for foods at a natural food store and wherever possible, purchase organic foods. If you need to, purchase staple foods via mail-order outlets.
10. Purchase natural foods cookbooks to help you with cooking techniques and recipes. Locate ethnic and other restaurants with healthy foods so you can give yourself a break from time to time.
11. Food cravings can be handled best by using holistic healing tools such as taking classes in yoga, meditation, moderate exercise and using a Twelve Stop Program (e.g., Overeater's Anonymous) for addictions. Getting small, regular amounts of protein at meals (e.g., legumes, fish, tofu, chicken, turkey, etc.) can help reduce sugar and other cravings.
12. When cooking and eating (including eating at restaurants) try to have a spirit of love and joy in your heart and serenity in your mind. Of course, this isn't always possible; so just do the best you can.

If you have any further questions please let me know.
Kind regards,
Billie77