SLE lupus..coused death?

Question

how long can i survive if i got lupus?

Answer 1

Despite the symptoms of lupus and the potential side-effects of treatment, people with lupus can maintain a high quality of life overall. One key to managing lupus is to understand the disease and its impact. Learning to recognize the warning signs of a flare can help the patient take steps to ward it off or reduce its intensity. Many people with lupus experience increased fatigue, pain, a rash, fever, abdominal discomfort, headache, or dizziness just before a flare. Developing strategies to prevent flares can also be helpful, such as learning to recognize your warning signals and maintaining good communication with your doctor.

It is also important for people with lupus to receive regular health care, instead of seeking help only when symptoms worsen. Results from a medical exam and laboratory work on a regular basis allows the doctor to note any changes and to identify and treat flares early. The treatment plan, which is tailored to the individual’s specific needs and circumstances, can be adjusted accordingly. If new symptoms are identified early, treatments may be more effective. Other concerns also can be addressed at regular checkups. The doctor can provide guidance about such issues as the use of sunscreens, stress reduction, and the importance of structured exercise and rest, as well as birth control and family planning. Because people with lupus can be more susceptible to infections, the doctor may recommend yearly influenza vaccinations or pneumococcal vaccinations for some patients.

Women with lupus should receive regular preventive health care, such as gynecological and breast examinations. Men with lupus should have the prostate-specific antigen (PSA) test. Both men and women need to have their blood pressure and cholesterol checked on a regular basis. If a person is taking corticosteroids or antimalarial medications, an eye exam should be done at least yearly to screen for and treat eye problems.

Learning to recognize the warning signs of a flare can help the patient take steps to ward it off or reduce its intensity.

Staying healthy requires extra effort and care for people with lupus, so it becomes especially important to develop strategies for maintaining wellness. Wellness involves close attention to the body, mind, and spirit. One of the primary goals of wellness for people with lupus is coping with the stress of having a chronic disorder. Effective stress management varies from person to person. Some approaches that may help include exercise, relaxation techniques such as meditation, and setting priorities for spending time and energy.

Developing and maintaining a good support system is also important. A support system may include family, friends, medical professionals, community organizations, and support groups. Participating in a support group can provide emotional help, boost self-esteem and morale, and help develop or improve coping skills. (For more information on support groups, see the “Additional Resources” section at the end of this booklet.)

Warning Signs of a Flare

* Increased fatigue
* Pain
* Rash
* Fever
* Abdominal discomfort
* Headache
* Dizziness

Preventing a Flare

* Learn to recognize your warning signals
* Maintain good communication with your doctor

Learning more about lupus may also help. Studies have shown that patients who are well-informed and participate actively in their own care experience less pain, make fewer visits to the doctor, build self-confidence, and remain more active.

Tips for Working With Your Doctor

* Seek a health care provider who is familiar with SLE and who will listen to and address your concerns.
* Provide complete, accurate medical information.
* Make a list of your questions and concerns in advance.
* Be honest and share your point of view with the health care provider.
* Ask for clarification or further explanation if you need it.
* Talk to other members of the health care team, such as nurses, therapists, or pharmacists.
* Do not hesitate to discuss sensitive subjects (for example, birth control, intimacy) with your doctor.
* Discuss any treatment changes with your doctor before making them.

Answer 2

Could be for different reasons. One of the reasons people might fear it is the fact that death can also come with pain depending on your situation. I.e. getting shot, car crash, severe illness, the possibilities are endless. Another reason could be the fear of the unknown. Nobody knows what death is like, if there is anything after death, etc. so fearing that is probably pretty common as well. Another reason is religion. Many religions, as you probably know, speak of Heaven and Hell so many people would fear that as well. I, personally, used to be afraid of death because of the pain that could be associated with it and it just used to be a pretty scare thought thinking about how I would be, well, dead. Everything I've ever known disappearing in a second. Now I really don't care. Death is a part of life and it just really doesn't seem so bad to me anymore for various reasons. Death was, is, and always will be a part of life so people will need to accept it at one time or another.

Answer 3

Lupus Patient myself It is all up to your body , If you get treatments for your immune system and there is no organ damage yet you can live a pretty long life. It's when your body over functions and starts to destroy your organs then time will fade. But if you see specialists and are constantly aware of whats going on and you fight , fight as hard as you can. Then you make time longer here. Here is a great web site for us . Good Luck

www.lupus.org