crohns disease?

Question

I am in so much pain. I have had numerous precedures done to find out that i had crohns disease. the docters have me on an anti-inflamitory and steriods and ant-acids so they said they may put me on more meds. the pain has only gotten more regular. I just want the pain to go away. they told me to stay away from dairy prducts too. i am just so sad and it hurts so much i am sick of docters and medication. they have me on a total of 98 pills a week. i just need some helpful information that maybe i have over looked

Answer 1

I am 37 and diagnosed with crohns when I was 13. It can control your life if you let it but I don't let it. Like the last person said keep away from seeded items they are the worst. I have recently started remicade and am amazed at the great results I am getting. It is an iv drug you receive once a month. I was in a horrible flare up the last 3 years and was just put on Remicade in January 07 and have no pain or problems for the last two months and have been putting back on the weight I had lost(over 25 pounds). Ask your doctor about it and if he doesn't want to try it see someone else who will. They give people with rheumatoid arthritis Remicade and they swear by it also, as it is basically a anti-inflammatory. Keep your spirit up and if someone thinks your grumpy, tell them they should try to walk a mile in your shoes, I bet they wouldn't get around the block. Good luck.

Answer 2

Just take care of it, do what the docs tell you. Stay away from anything with seeds like strawberry's, sesame seeds, poppy seeds, sourdough, spicy foods.

My mom died of crohn's disease 10 years ago. Don't let that scare you she was old and probably had it for years. And it was so advanced. The medicine that was supposed to help her had a side effect of kidney failure and she had only one kidney. So lots of people have crohn's and live normal lives. There is a web site I found sometime back w/ a support group. I think I found it on webmd.com

Good Luck. You'll feel better.

Answer 3

cope with it as long as you can.....I ended up having a colectomy and now will have colostomy bag hanging off my abdomen for the rest of my life. Things can always be worse than they are.