Does anyone else here suffer from CRPS, previously known as RSD?

Question

If you have, did you recover?
if not how long have you been affected by it?
Are you young? (Up to 25)
If not did it start young and was there problems in diagnosing it. Thanks, and good luck, i no what its like. : )

Answer 1

I've had CRPS for 8 years, but it took 5 years to get a diagnosis because I was mucked about by the medical profession for so long. I'm 22 by the way.

I've almost given up hope of recovery- even with major intervention (meds, blocks, SCS, physio, etc.) I've had spread occur and can't take more than a couple of steps on my CRPS leg without holding onto something.

Answer 2

Chronic Regional Pain Syndrome (Reflex Sympathetic Dystrophy) is a chronic painful condition which can be progressive and impairs function. There are treatment and these depend on what part of your body is affected. It is usually caused by a relativly minor trauma and there are theories that placement of ice on the intial injury was somehow responsible for the development of CRPS. Anyway, CRPS affects the autonomic nervous system although there is transmission of pain through other channels as well. It seems to be also a processing disorder at the level of the spinal chord (and possibly higher). I have seen patients (1) degenerate, (2) recover and (3) commit suicide from this disorder. I do not have any insightful answers or suggestions for you, but good luck.

Answer 3

I don't have it but my best friend from high school does. She went round and round to get it diagnosed, but has suffered from it since she was 12 or 13. She's 27 now...

Hers seems to come and go in its severity and affects one leg. They've tried numerous treatments (from pain killers and antidepressants for the sympathetic nerve) to actually installing device to stimulate her a sympethetic nerve.

In the end, it seems medication has worked best for her.

Answer 4

I found this article on this site which i find a reliable source of info on alternative & natural remedies.
This is what it said:
"...I am going to recommend you try a very unusual product, which has produced such an impressive body of empirical evidence - i.e. practitioners and patients who all swear it works - that it is now being officially recommended as a natural painkiller by the Canadian Reflex Sympathetic Dystrophy (RSD) Society. RSD is the name given to a type of nerve pain in which the pain is accompanies by changes to the surrounding blood flow and tissue. ..."
Please see article for more details.
I hope this helps!