i have a 2 months old baby with Tyrosine syndrome please if theres a doctor spacielist of this desease.?

Question

my baby is 1st case in mcallen, texas with that syndrome.

Answer 1

I am assuming the syndrome you are speaking of is "Tyrosinemia". As you know, it is very rare. There are a few groups conducting research on this disease, but they are located in Philadelphia, Oregon and Quebec (as well as in some EU countries).

I suggest contacting the organizations below for assistance.

The first is the National Organization for Rare Disorders. Their website is:

http://www.rarediseases.org/

Also, because this is a disease involving the liver, you can contact the American Liver Foundation. Their website is:

http://www.liverfoundation.org

Also, you can try the March of Dimes:

http://www.marchofdimes.com

I hope this information is helpful to you.

Answer 2

you might try to contact the American Board of Pediatricians so they can refer you to a specialist. Good luck!

Answer 3

what is that? please email me tell mii.... [e-mail]