If you had a genetic disease that causes a early and uncomfortable death would you want to know?

Question

If you had the option of knowing whether or not you had a depilating disease like Huntington's, would you prefer to live your life with or without that knowledge

Answer 1

I would want to know.. I think keeping it from someone is a lie..
I go on the premise of life : "to know the truth, and the truth will set you free". That means to me too to speak the truth..
I myself have a life threatening medical condition dealing with. I learned of just before Christmas.. I can't have a biopsy even because so much at risk.. so waiting till April for a second cat scan.. i opted for, rather than the biopsy risk . Life is a series of choices and risks at times. we are the ones dealing with ultimately.. none of us get the choice sometimes what we will be given to deal with, but i do have the choice on how.. In High School a friend had a life threatening illness. her family didn't tell her. She was never given the chance to do her life in a way she may have chosen different.. I went along my life one way before Dec. If i hadn't been told i know i would have gone on as did.. and the change that i have found is a good one./ a more peaceful one. rather things get worse or not.. i pray i can stay on this course new i have found.. there is a different sense of life and peace for me I have never had.. Maybe too because i already had one near death experience. in truth i don't want to leave my family, or think of what will become of those i love or the things i cared for, the meals i love to cook for others missed.. but this is the cycle of life , death.. Some of us pass quickly , silently and others suffer and sometimes long.. I pray whom ever this may affect will in the end know true peace.

Answer 2

I was born with Hunter's Syndrome and am glad I was told. It is a mild form of the disease. At least when everything started aching and my endurance was depleted I knew what to tell the doctor. (work comp insurance loved it too.)
But knowing what will eventually happen helps me prepare mentally and physically. Actually I thank god that I am doing as well as I am. They say It is because I worked so long.
Anyway to answer your question I am glad I was told and it helped me to face and deal with it.

Answer 3

I would like to know so that i could be real honset and upfront with my family.. but in the mean time i would also tell my family that i would not want them to feel sorry for me and lets spend as much time together as we can,, see in my eyes god has our books written out before we are even put here in this earth. that we are here for a reason. that he is not going to put us threw nothing that we can not handle that is also counting your family in that too. but i would really would want to know so i really could spen all my spare time that i have with my family and love ones as much as i can pleasr keep in touck and le me know how you are doing

Answer 4

Gotta know. Otherwise you'll be asking questions as to what the heck's going on with you and they'd have to tell you anyway.