seek cancer doctor who treats rare blood disease and gyn pre cancer.?

Question

I'm visiting in LA for medical reasons and learned of having pre cancer. doctor referrals so far not working. I have a rare blood disease, post splenectomy low IgM, more often is associated with patients with sickle cell and both conditions carry stigma and misconceptions among doctors. Most hematologists have never heard of the condition, Immunologists do know, but rarely help due to lack of experience. CDC says my case should be reported to public health to access the CDC for referrals. No doctor will. No primary doctor for 6 years. any experts are far across the country and local doctors don't make out of town referrals. went out of state before and was treated like a con artist and did not get referred to expert. Finding temporary housing out of town is hard as well.

Answer 1

Contact a local medical social worker who should be able to guide you in locating help. The following websites will get you started on how to locate a social worker in your area.

Social Workers: Help Starts Here
http://www.helpstartshere.org/

You can also contact social workers online for advice:
CancerCare
http://www.cancercare.org/

Good luck.

Answer 2

i know of 1 doctor that treats blood disease and other cancers he is in tennessee middle tennessee his name is doctor admed 1-800795-6770 he is treating my mother and husband for cancer he is very very good and will listen to you as long as you wont to talk he has other offices but i know 1 in nashville cant hurt to try hope i have helped you