Chrones disease?

Question

Hi a family member has been diagnosed with chrones disease last year, but it seems to be getting worse, the next option may be surgery to remove the whole of the bowel, has anyone had this surgery, or story about chrones, please, she is only in her early 30s, and very upset...any information gladly received, all the medicines have not worked ..so surgery looks likely ...thanks in advance

Answer 1

Family member has had part of her bowel removed for Crohns disease, it's a common treatment. They usually just take away the infected part and stitch the two ends back together. Sometimes a colostomy bag is need while the surgery heals, but this is not always necessary and my family member did not need this. She is much better now, but does have to have vitamin B injections every 5 months or so. The surgery wasn't too bad and I think she was only in hospital for three days, maybe four.
The disease can settle down for long periods and then flare up again. There are a few web sites with good information on, if you search under Crohn's disease. Good luck to your relative.

Answer 2

Hi. 3 years ago when I was aged 36, I had about a foot of my bowel removed (half a foot each of small and large intestine). The two ends were sewn back together so I didn't need to have a colostomy bag. I was diagnosed with Crohns after the surgery from the biopsy. This was after 10 years of very painful bowel problems. I was in hospital for 7 days and wasn't allowed to eat for about 4 or 5 days after the op, as they had to make sure my bowel was working again before I could eat.

Once I recovered I was put on a drug called Pentasa which is meant to stop recurrences, and I've been almost completely symptom free since the op. Occasionally I get a few minor problems, but nothing on the scale of what I had before the op. I don't need to take supplements like B12, as I didn't lose enough of my bowel.

I now feel great and am really pleased I had the op.

Answer 3

My father has had this since his early 20's he is in his 60's now and has dealt with the symptoms as they arise some very painfull and bloody. No operations done and none of the NHS tablets worked. He swears by an Indian quacks tablets which he gets by the bucket load taking about a dozen a day when the Crones flairs up. I opened them up and for ever and a day i would swear it is only curry powder in a red capsule. Nothing ventured nothing gained? With surgery once its gone its gone. Can he not tough it out and try some alternative medecine? Homeopathy, accupuncture and reflexology etc. There is definatly something in this.

Answer 4

hi my sister has had this diagnosed for the last10 or so years at worst she was in the same position,having to havePART of the bowel removed,i am glad to say though this did not happen,it is very worrying but my understanding is that this disease can come and go and can be horrible,she has youth on her side and as my sister did she had a very good dr in london.my sister has been fine for 5 yrs but there maybe another flare up.get as much info as you can i believe diet can help and i really do hope she gets through it without major sugery.

Answer 5

My friend was diagnosed with it when he was very young.......He is now 21 and has gone though years of suffering and many medications and surgery and finally is able to live with it. From what I know there is no cure, so you just have to consider the options and do what is best to deal with the symptoms day to day.

Answer 6

at least they can do something about it and its not gone past the stage were nothing can be done. my friend went in and had most of her taken away and she 7 years later as just given birth to a healthy baby boy. Chin up and keep thinking at least i can have a life after sugary there are people with worse thing.

Answer 7

Has your family member had a drug called infliximab,the trials for wich was done by prof robert allen uni hosp birmmingham my daughter as just had a course and she was on the list to have her colon removed on a thursday ,started infliximab friday came home monday without having op. good luck I know what you are going through at the momment very worrying. this drug needs ok ing by N.I.C.E.

Answer 8

Crohn's disease is sometimes treated with reflexology.
My cousin's husband has had this for 20+ years. He had surgery, but he still has discomfort.
Check into reflexology. It might help.

Answer 9

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