Does anyone have Neurofibromatosis Type 1?

Question

I was born Neurofibromatosis Type 1 and I have pain, numbness and pins and needles with it. Does anyone out there have the same illness as me? If so, how are progressing and what are you doing about treatment?

Answer 1

I have it. I to have the pins and needle feelings and sometimes the numbness, feeling which led to me getting another one of those fun MRI's which they found tumor pressing against my spine around my neck. I had to have surgery.

As for treatment, I'm taking nothing expect everyone in a while a pain pill as needed.