Does anyone have any kind of sleeping disorder?

Question

I have a sleeping disorder, but it hasn't technically been diagnosed.

I have the symptoms of Narcolepsy, but it can't be diagnosed as that because of my sleep pattern. To put it all in a nutshell, I am always sleepy. It doesn't matter how much sleep I get, I am still sleepy. I have slept for 12 hours straight, and still woke up sleepy. It's definately a sleep disorder because I have had every test under the sun ran on me, and everything is fine (blood, iron, sugar, etc...)

I read something on the internet about a disorder called Hypersomnia, and it describes me perfectly, but doctors are still researching it, so they can't diagnose it yet.

I have been on several medications, and nothing helps.

Do any of you suffer from any kind of sleep disorder? If so, has there been any treatment that has worked for you? I am so tired of feeling like this. It has ruined my life because I don't have the energy to do anything, and frustrating because I can't get diagnosed/cured

I am taking Provigil now, but it seems like my body becomes immune to it.

It helps for the first few weeks, then it doesn't have any effect at all. My doctor raised the dosage, but still, no luck.

Answer 1

When I was in my 20s I had a similar problem, it wasn't known what it was at the time! I fought constant tiredness for years and then suddenly it stopped...no reason I could figure out but I went back to normal, literally overnight. I was used to waking up feeling awful, one morning I woke up and felt alive...it was a shock! lol
I hope the same happens with you.

Answer 2

Why would you think you have narcolepsy? Is sounds like you have totally non-refreshing sleep. That is something completely different. You need a sleep test where they hook you up to an EEG and see what is happening in your brain while you sleep. This tests for sleep apnea among other things. Sleep apnea can cause you to have non-refreshing sleep.

Answer 3

I know the feelings and frustrations. Have you tryed Provigil?