Is there anyone out there that has Freeman-Sheldon Syndrome?

Question

I'm asking because I have and my sons have it as well. Now my grandson was born with it.

Answer 1

I had not heard of this, but I did a little research to find support groups where you could share your experiences, questions, and feelings with others in your situation (and your sons' and grandson's). You may already know about them. They seem more likely to have what you're looking for than this site. In either case, good luck to you.