i have a child with down syndrome she is 5 years old and in reg. school..she does go into a different class.. then the other children ,.,i did not know when i was pregnant that my daughter was going to be born this way but it was not a problem she is beautiful and a great learning exp..we are still learning..as time goes by and everyday is a challenge. she had lots of medical problems with her heart here ears and here eyes..but all is well now..she is not talking much but to be expected.. any thing else please ask not a problem ..thats why we are here in this world of special children.. they are..very special..
2007-03-13 14:28:04
·
answer #1
·
answered by denise d 2
·
0⤊
0⤋
okay, my six year old daughter is considered legally blind.she was born this way and will always be this way. so here it goes....
!)what effect does having a child with special needs have on your family?
It can be stressfull at times. People try to treat her differently, which she hates.
2)when did you find out your child had special needs?
when she was six months old. They told us they thought she was totally blind and I can still remember feeling like the doctor had ripped my heart out of my chest.
3)How does having special needs affect your child at school?
She has to sit close to the board, she uses large print books, teacher has to give extra help when needed, she uses a sighted friend to help her move around the building and playground. Other than that, she is viewed as normal by the kids and has alot of friends.
4)What devise would you give to parents who have a special need child?
Be patient and never give up. Someone may try to tell you that your child can't do something...be prepared to fight for your child in so many ways. Never let your child feel like they are a burden on you. They are gods special gifts
5)Do you know anyone else with a special need?Who? Are they related you in anyway?
my nephew is autistic
6)Do you think anything be different if your child wasnt special needs?What?
I don't think I would be as strong of a person as i am. I have had to fight in order for her to be allowed to do many things and that has made me so much stronger.
6)At some point do you think your child will be able to live alone?
she can do anything she puts her mind to. as long as she knows how to be safe. I asked her eye doc the same question when she was diagnosed and I was going through the "poor us" stage. She will never drive a car or have a job where good vision is required, but she will be okay
7)Have you made any future provisions to make sure your child will be taken care of later in life? By who?Where?
no. it hasn't really been necassary
8)What have you personally learned by having a special needs child?
That life doesn't always go as planned. there are detours and bumps in the road, but its not enough to stop me from getting where I am going. I am a mother..it doesn't matter if my child is disabled or not, I am still her mother and I love her the same.
2007-03-14 05:25:26
·
answer #2
·
answered by angel_kissed_2003 2
·
0⤊
0⤋
I am a guardian to a special needs child. He has FAS and while it's not as bad as most children have it it's still lingers and it's still there.
1. There is a little bit of an effect of having him around but we don't really mind. It's hard to have nice evening dinners at times. Homework is really difficult and it's really hard to explain to other families his disabilities.
2. He was my cousin's child. After he was born they found he had FAS that's when guardianship went to my aunt. Then after hardship in her family he has finally settled in with my family.
3. It effects his school life greatly--socially and mentally. He does have mild retardation so we do have to spend extra time with homework--reinforcing what he just learned. His attention span is slow so it's hard for him to be in a typical classroom setting. I spend a lot of time talking with his teachers about his difficulties. He's five years old but he has been in preschool two years in a row in order to get better social skills.
4. I think you mean advice. I'd say that you should really be patient. It's hard but it's do able. Kids are kids disability or not if you just try to forget about it for a while things are normally okay.
5. Yes, we know quite a few people with special needs but none of them are related to us.
6. At times I do think things would be different. His struggle with school and grasping concepts are especially hard on me.
7. Hopefully, we can prepare him with what he needs in order to live successfully in his own home. If not, he's more then welcome staying with us.
8. No, I haven't made any provisions. Right now he is "temporarily" living with us. Temporarily started two years ago and hasn't changed since. I don't think it's "temporary" any more.
9. I've learned a lot. I've learned that patience is great and that you can learn a lot from children with disabilities.
I hope this helps. While it isn't severely and mostly just a physical disability--it's still a disability.
2007-03-13 21:59:20
·
answer #3
·
answered by .vato. 6
·
0⤊
0⤋
I am a single mother of 3. A 15 yr old with Aspergers Syndrome, mood disorder, developmental motor coordination disorder, and seizure disorder. A 12 yr old with ADHD, LD, possible Bipolar, PTSD, migraines. And an 11 yr old with ADHD, Mood swings, PTSD, GERD. I am also the cousin to a 30 yr old with Cerebral Palsy,wheelchair bound and tube fed. Also Aunt to a 14 yr old with severe CP, Seizure disorder, blind, and Respiratory distress syndrome.
1) Raising speacial needs children can be very stressful, and frustrating at times, but they each have such a loving personality that it makes it all worth it in the end.
2) I knew at the age of 3 my son, with Aspergers, was different, but by the age of 5, I was desperate for answers. He was finally diagnosed at age 7, but meds were not regulated til age 11.
3) My son with AS, has a hard time with changes in schedule or his teacher being absent. He also has difficulty in socialising with peers. A self contained class has helped him tremendously.
4) I would have to say, never give up hope, and be an advocate for your child. Remember labels are just that, if it gets the services your child needs then don't sweat it. Above all Cherish your speacial gift, after all Your were Chosen For the most rewarding "job" you will ever have.
5) As I said earlier, My nephew, age 14, has CP, Seizures, blind, among other health problems. My Lil cousin also has CP.
6) Sure things would be different, But I wouldn't trade my kids, our life for nothing in the world.
7) My son, will always require assistance, I know He will never live alone. Possibly an assisted living arrangement, or my choice, with family.
8) I am in the process of all that. I do have him signed up for all available waiver programs. Have someone lined up to take care of him in case something ever happened to me. We also just got a personal care attendant for him. Hopefully to foster independance, and help with his total dependance on me.
9) I have learned patience, compassion, my own strength, and many laws, meds, medical terms Ect. Too many to list. I have also learned the true meaning of unconditional Love.
I hope this helps... Take care...
2007-03-14 08:21:26
·
answer #4
·
answered by hippychic3737 1
·
0⤊
0⤋