People with MS taking Copaxone......?

Question

I have been taking Copaxone injections for Multiple Sclerosis for the past month and a half. Last night I had my first post injection reaction--you know, the one they warn you about with chest tightness, flushing, difficulty breathing, anxiety, hot sensation and so on. Has anyone else experienced this? I am afraid to start back with my injections. I wouldn't want to go through that again--I thought I was dying! Anyone have feelings on this?

Answer 1

Absolutely. I've been taking it over a year now, and it's happened twice where I'd really notice. My nurse told me that it happens when you hit a vein, because the medicine gets into your bloodstream and starts causing a reaction in your heart where it all pools. It takes a few minutes to pass while the blood recirculates, but it does pass.

However, PLEASE don't let that stop you. Keep taking your medicine. If it happens continuously, (like for three or four days) call your neuro. You can also talk to a Shared Solutions nurse 24x7.

Some suggestions:

1. Don't take your shot right after a shower! You're already hot and your blood is flowing. If you do hit a vein then, it's going to be just that much worse. Take your shot before your shower.

2. When you do the shots on your thighs, try to avoid the veins. They're a little easier to see there.

Let me know if you have any other questions; I'm here to help.

Answer 2

I have been on Copaxone since 1998. I had this reaction just once during the first six months of use. It was scary and I can understand your reluctance to have it happen again.
Try your injection again -- relax and take deep breaths beforehand. Pay attention to where you are doing the injection, just as the answer above suggests, to avoid any veins.
I'm glad I stuck with my injections. There were so many days in the beginning I wanted to give up and quit. But I stuck with it and I know that taking Copaxone has kept me from having relapses. (Only two since beginning the drug.)
Please don't give up. Chances are you might not ever have this side effect again. The benefits of being of drug therapy are very beneficial.
Also, you can check out the Copaxone website for help and advice or to connect with others on Copaxone. (www.sharedsolutions.com).
Were you trained in doing the injection by a Shared Solutions nurse? They will come to your house and teach you proper technique and answer questions you may have.
Good luck! Please don't give up!