Has anybody dealt with Torticollis?

Question

My baby was diagnosed with Torticollis today. I want to know if anybody else has gone through this. What was your experience?

Thanks!

Answer 1

My son had Tort and also needed a helmet for Plagiocephaly as the Tort kept him looking to the right and that side got flat before we could get a handle on the situation! It's really not a huge deal, it's just important to listen to your Physical Therapist and do the home exercises exactly like they tell you. It's a lot easier if you have another person to help you b/c my son HATED being made to sit there and do those exercises so you may need someone to help keep him from squirming. There is a great yahoo groups called Babies with Plagiocephaly and a lot of mom's on there have tort kids. There is also a group called Torticollis kids
http://health.groups.yahoo.com/group/Torticolliskids/

Both of these groups are really great and have mom's on that can give you really good tips. Good luck!