Extremley painful pain i need advice please help?

Question

It all started with uti's then my kidney hurting i had a ct scan done and they found a 2 mm kidney stone that's not what is really bothering me i have an extreme pain in my pelvic area! It feels just like period cramps but far worse. they sent me to a urologist and he said it wasn't kidney stones? I'm at my wits end i've had blood in my urine for 3 months!!!! Any suggestions?? The doctors cant figure this out i've been prescribed hydrocodone for pain i have been taking about 5, 7.5 mg a day but really do not want to ask for more as he has been prescribing this for 3 months! But what am i to do??

Answer 1

Upallnight
Please dont take this the wrong way but you need to understand something about Doctors......They are really glorified mechanics. The only difference is the machine they work on is the most complicated on earth....The human body!......Now when I take my car to my mechanic to diagnose and then hopefully repair a problem I do so with the attitude that if he cant fix it then I'll find someone who can. It is no different with my body. When there is a problem I go and see my Doctor and then if necessary a specialist. If that specialist mechanic can't diagnose and repair the problem then I continue looking. I had a kidney problem in my Mid twenties it took visiting 3 independent specialists before the correct diagnosis was made.
Mind you I would also say that if I went to 3 -5 specialists and they all gave me the same diagnosis then Id accept it and then have to make a review of what treatments they suggested

The other thing is have they given you anything to help break down the stone? A 2mm stone is not overly big it can be broken up and passed.

The pelvic pain is interesting. The way you equate it to period pain I assume you mean it is a surging type pain that changes intensity?...... 2 questions did it start after the kidney stone pain
and if so have you had a CT or MRI or at the very least xrays to look for any spinal nerve problem. By this I mean it could be muscle spasms brought on by a spinal problem.

Did the Urologist also discount any bladder problem?

Another possiblity is colon related. You can get severe cramping like pains in the very lower abdomen/pelvic area when there is a problem with the colon. Are you sure the blood is from the urine only and not also in your stool? just double check that.

Bottom line though is 3 months is too long to just meander along with no answer to the pelvic pain and the bleeding so ...please see another doctor

Answer 2

Walking never hurts...it helps prepare your body and help the baby get way low...but as far as other labor starters id wait til a day or 2 before your due but watcch out for castor oil if you take to muc it can give you the runs and make you vomit and that's something you don't want during labor. Congrats and goodluck

Answer 3

That sounds terrible to me, I'm very sorry.

Kidney stones can easily produce this type of pain and have been called "the worst pain that can be felt" by some people. You need to go back to that urologist or another one and get a second opinion right away. If it was me, I would go to the ER and have them sort it out (once you get in they will figure it out before you leave).

Best luck,
Ian

Answer 4

First you consult a skilled acupuncturist. Then find out the reason of blood in urine, that is also equally important.
Acupuncture and magnet is the only treatment for all pains.
For stone purchase a strong round magnet. Keep S pole touching the kidney site skin on back, or put your kidney site of back on S pole by keeping magnet on bed.
You can put S pole on your pelvic area when it pains, you will get relief immediately.

Answer 5

OK. People here may be concerned, but truthfully, NOBODY here can tell you what's wrong or what to do about it. So, here's the deal. Doctors are not ultimately responsible for our health; we are. Let me ask you a question -- Do your doctors pay YOU to go to your appointments. Shoot, no. You pay them. That means they work for you. So, fire your doctors and go hire new ones who will figure out what's going on and help you. Please, take charge so you can get well? Best wishes to you.

Answer 6

find a different doctor - apparently they are missing something. good luck and i hope you feel better soon.

Answer 7

You need to go to the Mayo Clinic. I was feeling lousy after a car accident and I kept going to the same Dr.'s and they thought that I was just a chronic complainer. Every time I went to the Dr. they were not able to give me answers. They treated me like I was faking. So I quit going to the Doctor's. I reached the point that I was unable to get out of bed and I was blacking out. Yet every time I went to these Dr.'s they treated me like I was crazy. Finally one day a girlfriend stopped in to see me and she was so afraid of how I looked she took me to her Dr. and I found out that my Kidneys were starting to shut down. My body was being poisoned, I was loosing my eye sight, and I was unable to eat,or have a BM. I almost Died! If you are sick and they can't find out what it is, you need to go to a different Doctor and don't stop until someone can give you answers. Just because this Doctor can't find the answer, it does not mean that you don't have a problem.Try the Mayo Clinic. They are so good and they will not stop until they find out what is wrong.

Answer 8

I had symptoms that were very similar. Ultimately I was diagnosed with Pelvic Congestion Syndrome. With the blood in your urine, it could also be Interstitial Cystitis. IC can only be diagnosed through a cystoscopy, PCS through a laparoscopy.

PCS is similar to varicose veins, but in your uterus. It can be debilitatingly painful, as it was for me, or not very painful at all. I could not get out of bed or function normally at all due to my pain. MY gyn said that the only hope for a cure would be a total hysterectomy, which he wouldn't consider due to my age and which was not a guarantee of relief anyway. He put me in pain managemnet, and I am now on Oxycontin and Oxy IR for breakthrough pain. They have given me my life back.

With the blood in your urine, though, I'm thinking it my be IC. They tested me for this before they diagnosed the PCs. I've had 14 kidney stones and more UTI's than I can count or care to. IC is a condition that results in recurring pain in the bladder and the surrounding pelvic region. The symptoms vary from case to case and even in the same individual. People may experience mild discomfort, pressure, tenderness, or intense pain in the bladder and pelvic area. Symptoms may include an urgent need to urinate, a frequent need to urinate, or a combination of these symptoms. Pain may change in intensity as the bladder fills with urine or as it empties. Women's symptoms often get worse during menstruation. They may sometimes experience pain with vaginal intercourse. IC is much more common in women.

Because IC varies so much in symptoms and severity, most researchers believe that it is not one, but several diseases. In recent years, scientists have started to use the term painful bladder syndrome (PBS) to describe cases with painful urinary symptoms that may not meet the strictest definition of IC. The term IC / PBS includes all cases of urinary pain that can't be attributed to other causes, such as infection or urinary stones. The term interstitial cystitis, or IC, is used alone when describing cases that meet all of the IC criteria established by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).

In IC / PBS, the bladder wall may be irritated and become scarred or stiff. Glomerulations (pinpoint bleeding caused by recurrent irritation) often appear on the bladder wall. Some people with IC / PBS find that their bladders cannot hold much urine, which increases the frequency of urination. People with severe cases of IC / PBS may urinate as many as 60 times a day, including frequent nighttime urination.

Because symptoms are similar to those of other disorders of the urinary bladder and because there is no definitive test to identify IC / PBS, doctors must rule out other treatable conditions before considering a diagnosis of IC / PBS. The diagnosis of IC / PBS in the general population is based on presence of pain related to the bladder, usually accompanied by frequency and urgency
and an absence of other diseases that could cause the symptoms. Because the causes of IC / PBS are unknown, current treatments are aimed at relieving symptoms. Many people are helped for variable periods by one or a combination of the treatments. Many patients have noted an improvement in symptoms after a bladder distention has been done to diagnose IC / PBS. In many cases, the procedure is used as both a diagnostic test and initial therapy. Researchers are not sure why distention helps, but some believe that it may increase capacity and interfere with pain signals transmitted by nerves in the bladder. Symptoms may temporarily worsen 24 to 48 hours after distention, but should return to usual levels or improve within 2 to 4 weeks.

This first oral drug developed for IC, Elmiron, was approved by the FDA in 1996. In clinical trials, the drug improved symptoms in 30 percent of patients treated. Doctors do not know exactly how it works, but one theory is that it may repair defects that might have developed in the lining of the bladder. Aspirin and ibuprofen may be a first line of defense against mild discomfort. Doctors may recommend other drugs to relieve pain. Patients with IC / PBS do not respond to antibiotic therapy.

Some patients have experienced improvement in their urinary symptoms by taking tricyclic antidepressants (amitriptyline) or antihistamines. Amitriptyline may help to reduce pain, increase bladder capacity, and decrease frequency and nocturia. Some patients may not be able to take it because it makes them too tired during the day. If you have severe pain, immediate-relase narcotic analgesics or longer acting narcotics may be necessary. Don't be ashamed or afraid to take the hydrocodone if it helps. Clearly you really need it. You have a right to be free of pain. Narcotics are the oldest and safest pain relief drugs available. Addiction is only a danger if you abuse the drugs. Taking them exactly as prescribed, not increasing the dose without your doctor's advice, there is a less than 1% chance of addiction. You may need to go to a pain management doctor. Like I said, I take Oxycontin and Oxy IR, and my life is so much better pain-free. Sometimes, nothing else but a narcotic works. Needing pain relief doesn't make you an addict. Becoming dependant on the drugs for pain relief doesn't make you an addict either. Diabetics are dependant on insulin, but no one calls them addicts. Don't let opiophobics intimidate or frighten you into thinking you need to suffer just so you don't have to take a narcotic. Go to a pain clinic, work with the doctor there to find the medication that works best for you and has the fewest side-effects. My pain doc is a diplomate member of the American Academy of Pain Management. This sit will help you find a member doc in your area: http://www.aapainmanage.org/search/MemberSearch.php

Good luck. If you need to talk to someone or you have any other questions, feel free to e-mail me!