Does any one have experience with meniere's disease?

Question

I am being tested for this. I am concerned. I fyou have it did it get worse before it got better? Did you lose hearing? Do you have tinnitus? Does it get louder? Did you have an ENG ? Did that induce an episode of vertigo? Can you tel if you are going to have an episode of vertigo? Does diet and exercise hep? How iften do you get vert. and how has it affected your life?

I am also a life long sufferer of Migraines and have read there may be a connection. Do you get migraines as well?

The reason I'm asking here is my tests aren't for weeks and it's hard not to be anxious when you feel sea sick and hear ringing and have 3 kids under 7. There is a range as with most illnesses. this one being mild to ultimate deafness. Doctors won't be the ones to tell how it will be day to day living. I like to hear form people experiencing it since it is a kinda rare thing and don't know anyone who will understand me-including the doctors.

p.s. ther is no cure ..save ultimate damage to ear =deafness

Answer 1

There seems to be a link between migraine and Meniere's disease. Food triggers are known to cause migraine attacks in some people. A similar trigger may contribute to some attacks of Meniere's disease. For example, cutting out caffeine (found in tea, coffee, cola, and chocolate) and alcohol may be worth trying.

I add a link that contains further links with which to further your knowledge regarding Meniere’s disease.

http://oto.wustl.edu/men/

Hope this helps
Matador 89

Answer 2

Meniere's disease is an inner ear disorder that produces vertigo, fluctuating sensorineural hearing loss, and tinnitus. There is no diagnostic test. Vertigo and nausea are treated with anticholinergics or benzodiazepines. Diuretics and a low-salt diet may decrease frequency and severity of episodes. For severe cases, the vestibular system can be ablated with topical gentamicin or surgery.
Please see the web pages for more details on Meniere’s disease

Answer 3

My mom was misdiagnosed with it years ago. Loss of balance from the inbalance in the fluid in your inner ear is what they told her. It was terrible - she would keep stumbling when walking and people would sometimes look at her funny - maybe they thought she had one too many, you know? Turned out she had a tumor (benign) which was affecting her balance. Don't mean to scare you. All is well now. Definitely get a second opinion! Get an MRI to rule out any kind of potential tumors. Good luck.

Answer 4

I see that you are really quite apprehensive-so many things going on in your mind. It's understandable but I suppose the best thing to do is trust your doctors and have them explain to you in full what is wrong with you and get the cure. Then you won't have to ask here.