where can I get help for ALS?

Question

I have symtoms of ALS but six Neurologist are not for sure. I heard Sutter heath has full body scances. I've gone out side of Kaiser. I'm willing to go anywhere. I been progressing the past 2 years. I'm a 55 year old female. I can't walk anymore I use an electric wheel chair. I lose my balance I taken many falls. They ruled out Parkenson. Myleft side is is weaker then the right. My speach is effective?

Answer 1

you did not say were you lived. here is a phone number to call to ask for advice. I would also call kaiser to see if they will step up more treatment or send you outside of the system for treatment. Here in ohio kaiser is teamed up with the Cleveland Clinic.

ALS Association (ALSA)
27001 Agoura Road
Suite 150
Calabasas Hills, CA 91301-5104
http://www.alsa.org
Tel: [phone]
Fax: [phone]