My son Is 6 year old.He is suffering from leukodystrophy.?

Question

My son Is 6 year old.He is suffering from leukodystrophy.He is improving as he starts sign language and few words.He almost understands every thing and plays tricks aswell.I just want to know about this problem does it stays forever like that or it get worst by the passage of time.Thanks

Answer 1

Treatment options for metachromatic leukodystrophy are very limited. Bone marrow transplantation, when performed early in the course of the disease, has been used effectively on appropriate patients, but also poses some risk. Gene therapy research may eventually lead to a cure or treatment to slow the progression of MLD disease. Genetic testing and genetic counseling are strongly recommended for adults with a family history of MLD.

this is the best i could find, but i will pray for your son.

Answer 2

http://www.alds.org.au/
http://www.ulf.org/
http://www.weegeorgie.co.uk/

These sites could be a good start in your quest to find out more about this condition. If you are in the UK then please ask your GP to put you in touch with a paedeatric nurse or other specialist who will be able to give you the information you need. (If you are outside the UK then I'm sure you will be able to find the equivalent) The people here are just folk like me, sat at home and a little bored, we are not the best people to ask about the more important things in life.

Answer 3

here might help.

http://www.ninds.nih.gov/disorders/leukodystrophy/leukodystrophy.htm

For support groups try
http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
God bless you. Good luck. for encouragement try ttb.org

Answer 4

I FEEL YOUR PAIN BUT I THINK YOU SHOULD ASK A PROFESSIONAL ABOUT YOUR CHILD NOT THE LUNATICS ON HERE....GOOD LUCK WITH YOUR BOY

Answer 5

you have to check with the doctor and see what he says

Answer 6

what the frick is leukodystophy!!! and how would i no ask a doctor