I am desperate to find a dr who specialises in growth hormone disorders in children. Im from the U.K.?

Question

My daughter is 3 1/2. She has had an IGF-1 which was normal and a more detailed growth hormone test that cam back normal today. She is well below the normal height limit. Only grew 3cm in a year. I need to find an expert who is willing to offer help and advice. We are under a wonderful Dr but I feel the need to look further afield. PLEASE HELP! From a desperate mum.

I live in Milton Keynes Buckinghamshire. My e.mail is [e-mail]. Any help would be welcome. Thank-you.

[e-mail]

.com (end of address).

Answer 1

go to the "pediatrics support group" and sign up at
http://hgfound.org/
they have so many members that one of them is likely to live in the UK with a suggestion for you
this group is wonderful- there is so so so so much information that is detailed, medically accurate, and up to date that is given to you on this support group.

Answer 2

It appears like your daughter might want to have a form of dwarfism. in case your pediatrician made this prognosis and then reported attempting to assist her strengthen making use of boom hormones I actual do not see a situation with it. My kinfolk buddy had a daughter who replaced into clinically determined with dwarfism as a youthful newborn and she or he took boom hormones. She replaced into shorter in stature than different little ones her age and her dad and mom wanted her to be in a position to slot in a touch more desirable sensible with her friends. The hormones worked and she or he grew an additional desirable 6 inches from the time she replaced into 5 years old till overdue teenage years. She continues to be very short, yet her legs and palms are more desirable proportional than many different adults with dwarfism I easily have considered. She leads an particularly chuffed lifestyles, went to varsity, dates many times, drives a automobile and performs activities. What i'm putting forward is that with the medical technologies now accessible it really is accessible to inspire the body to make stronger even even as genetic aspects are prohibitive which includes in genetic dwarfism. i'm no longer putting forward that human being dwarfs who've not in any respect received hormone treatment are unhappy or a lot less in a position to stay helpful lives, i'm only putting forward that they could have more desirable subject matters with self-image and setting up right into a tall society than a dwarf who took the boom hormones and acheived a taller precise. yet particularly, you because the mother recognize your daughter proper and it might want to be in her proper pastime now to not take the hormones given any negative consequences. you may want to opt to get a 2d opinion. i do not imagine i might want to have "lost it" with the Dr. yet might want to have tried to attain a larger information of why the Dr. believed my daughter needed the hormone treatment. it might want to probably be proper to come across a Dr. who's more desirable approachable and a lot less stressful to you. they're obtainable, only attempt some and also you'll likely come across a Dr. who both helps your perspectives or delivers you with compelling clarification why this hormone treatment might want to be needed on your newborn. i might want to pass such as your instinct although in case you experience strongly that it really is incorrect for her. you're the mother and that i have self assurance moms recognize proper.

Answer 3

I will be glad to help you Ma'am, but in which place in UK. I can forward your email to my colleagues of mine they are in a better position to help you out.
Mean while you can contact a Paediatrician at your place.