Brain Tumor?

Question

My boyfriend has a stage 4 Brain Tumor .. It cannot be removed ... He has had the gammaknife .. Radiation and is now on Chemo which is now not doing the job .. He is getting tired of all the meds. and chemo and seizures and headaches and just plain getting tired of it all ... The thing is he isnt that sick to the outside eye ... but he is doing things that he shouldnt be doing like drinking (beer) taking alot of over the counter uppers ... anything that will make him feel better ... as he slowly goes downhill ... At this stage and what he is doing to himself can anyone tell me if they have experianced this with a loved one and what comes next? Its getting harder for me because he is either in bed not feeling good or drinking and driving me crazy with the drunk talk .. I want him to feel good but this is getting really bad ... Thanks for any help

Answer 1

Missy, I am so sorry for you b/f and you. With a stage 4 brain tumor (glioblastoma multiforme, correct?), there's no hope in sight, especially when you can see he is going downhill and the radiation is not helping. It MAY actually be helping, but it won't get rid of it. It may just be helping to reduce the rate of growth, along with the chemo.
I can talk extensively with this. If you would like to email me privately, feel free. My Mom passed away with multiple glioblastomas 10.27.2004. I did a lot of reading. Maybe I can help you through some of this.

Jill
[e-mail]

Answer 2

God bless your boyfriend, and you. This is a very difficult situation. It would seem to me that he has made up his mind, and if this is what he wants, then I think you should just agree and go along with him. I have a friend who is in the end stages of ovarian cancer, and she has refused all treatment. The only thin she has is pain medication if she needs it. When she feels good, she eats whatever she wants. She is now confined to bed, and cannot even sit in a wheelchair. Her family and friends spend as much time with her as possible. It is a very hard thing to watch someone you love having such a difficult time. Just let him know you are there for him. I know it is hard for you, but just imagine how it is for him - he is the one with stage 4 brain tumor. Do whatever you can for him, and respect his wishes. I will keep both of you in my prayers.

Answer 3

Look into this. Take vitimin c. The FDA says that the RDA for vit c is 64 mg a day. Linus Pauling who got a Nobel Prize for his work on vit c and a second Nobel Prize for organic chemestry says 1000 mg a day normally and 2000 mg a day if you are sick. Try it. A few years ago there was a research papaer out that said Interferon was the best cancer and infection fighter available, but it was $15,000 a gram. What the paper also said was that Interferon was the product of the natural breakdown of vit c in your system. Shortly after that paper came out the FDA tried to put vit c on perscription only. Guess why?? I had "something" that had me sick 2 weeks twice a year with at least one week in the middle flat on my back. After 25 years of doctors not knowing what it might be I started vitimin C therapy when I got sick. I took enough to keep me asymptomatic and just below too much to give me diarrea. It followed a bell curve over 2 weeks and at the peak I was taking 40,000 mg a day with 300,000 mg over 2 weeks. I did that when I got sick for 2 years and have never gotten sick in the last 10 years. Look into it.

Answer 4

At this stage in his cancer there most likely isn't much to do that will prolong his life but things can be done to make sure he lives out the rest of his life happy. Getting drunk is his way of not thinking about his death. All you can do for him is be there for him! Make him feel good in anyway you can. It is most likely easier to get drunk than to deal with reality. I am sorry about your boyfriend I wish you guys the best....just be supported and let him know how much you love him!

Answer 5

Sadly, it sounds as if your boyfriend has made a decision whereby he is more interested in improving the quality of the time he has left instead of continuing with a regimen that is draining him of vitality and hope. I would recommend contacting his Oncologist and family physician, as they may be able to refer him (or more likely the both of you) to a qualified therapist who can work to make this make a bit more sense.

If his prognosis is terminal, and the treatments just aren't working, then it's also his Oncologist who can recommend an appropriate course to follow to minimize the pain and fatigue for whatever time he has left.

My best wishes to the both of you, and I'm pulling for you guys.

Answer 6

I don't know what his prognosis is , but it is possible that you could get him help from hospice if he is agreeable to that...they have medications for pain relief, hospital supplies, nurses, aides, clergy, social workers, doctors, who work together to help people with terminal illnesses. They do not turn anyone down who has a qualifying illness (depends on prognosis of 6 months to live) no matter if they have insurance or money or not to pay them. If you do have insurance, that will help to defray their costs, but it is not necessary...maybe check into this ...if he is using alcohol for the pain, perhaps they can provide him with better pain relief medications.Good luck.

Answer 7

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