Anyone know a web site with good detailed Lupus information?

Question

I have central nervous system involvement and now possibly brain.

I noticed one of the answers recommended echinacea. I was told by my rheumy that it will exacerbate my symptoms

Answer 1

Hi Debi

Here is some info you wont find on any of those sites.

Cause
Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

Both forms of lupus primarily strike young women (90% of cases) and young children.

The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.


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Natural Cures

Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment. I suggest several at-home hydrotherapy treatments.

Hyperthermia: Hyperthermia involves artificially creating fever in the body for the purpose of boosting immune function. Hyperthermia can be a highly effective method of eliminating toxins and heavy metals, as well as infectious bacteria and viruses that cannot survive in elevated body temperatures. I suggest several at-home hyperthermia treatments.

*Purified water is essential for any hydrotherapy or hyperthermia treatment. Remedies for Treating Chlorinated Bath Water offers clear instructions and recommendations.

Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

Topical Treatment: PABA cream applied topically can help ease symptoms.

Alternative Professional Care
If your symptoms persist despite the above measures, seek the help of a qualified health professional. The following professional care therapies have all been shown to be useful for treating Lupus: Acupuncture, Biofeedback Training, Bodywork, Cell Therapy, Chelation Therapy, Detoxification Therapy, Environmental Medicine, Enzyme Therapy, Guided Imagery, Homeopathy, Juice Therapy, Light Therapy, Magnetic Field Therapy, Natural Hormone Replacement Therapy, Naturopathic Medicine, Oxygen Therapy, Qigong, Rolfing, and Traditional Chinese Medicine.

Best of health to you

Answer 2

Please see the web ages for more details and images on Systemic lupus erythematosus. There is no cure for SLE. Treatment is aimed at controlling symptoms. Your individual symptoms determine your treatment.

Answer 3

This is a UK lupus website but the owner keeps it very up to date with lots of info and features.

http://www.lupusuk.com/index.asp

http://www.mayoclinic.com/health/lupus/DS00115

http://www.emedicinehealth.com/lupus_systemic_lupus_erythematosus/article_em.htm

and in Dr terminology:

http://www.emedicine.com/emerg/topic564.htm and

http://www.emedicine.com/MED/topic2228.htm

good luck

Answer 4

http://en.wikipedia.org/wiki/Lupus_erythematosus
http://www.ohsuhealth.com/htaz/arthritis/common/systemic_lupus_erythematosus_lupus.cfm
http://www.nlm.nih.gov/medlineplus/ency/imagepages/17134.htm
http://www.emedicinehealth.com/lupus_systemic_lupus_erythematosus/article_em.htm

Answer 5

http://en.wikipedia.org/wiki/Lupus_erythematosus