My son has Hemophilla A, and I cannot get the school to contact me?

Question

My son has severe Hemophilla A, I can not get the school to contact me when ever he gets hurt. He actually feel down and hit his foot wrong he asked for an icepacka nd to call me and they told him, no that he was ok, and they were waiting to use the icepacks on "real" injuries. His foot swelled up huge and took extra Factor 8 to clear up. How do I get them to call me? I've asked nicely about tens times, and he is still coming home hurt. Should I pull him out and home school?

**For those of you who do not know what hemophilla is, It is when you are missing the component in your blood that clots, thus causing big bruises if hit slightly, or even if you grab him to move him, bumop into him. Because of the hemophilla, he already has arthritus in 25% of his joints. It is very important for him to get med. as soon as he gets hurt.**

Answer 1

You need to get a something called a Chapter 15 plan on him. This is a form of special education that is geared towards children with medical issues only (not mental disabilities). You will have a meeting with some school officials and possibly a Dr. They will then write down all the accommodations that your son needs to have, like follow up phone calls, ice when needed, etc. This will protect your son in school and also his education

Answer 2

I suggest going down to the school and discussing what a serious condition he really has. Tell them that it is very dangerous if he doesn't get the medication right away and that he must be treated for every bump and scratch. Ask them why they don't allow him to call you. Most schools have a "wall of specialties" where they post a picture and the special medical attention they may have on a wall where all the staff can see (usually says things such as "allergic to bees" "has severe athsma").

Remember to be calm and cool. Angry parents only illicit an angry response. If you find this to be continuing after discussing the issue with the principal, go to the superintendent. You will definately get a reaction then.

Answer 3

If I were you, I would get your doctor to write down an order telling them that you must be contacted at once any time his is injured, no matter how trivial the injury may seem to them, and that failure for them to do so, may result in a life threatening situation due to his condition.
If the doctor agrees to do this, make copies of the original order and first take it to the board of education that this school falls under and tell them that you need to speak to the chairman that is a medical necessity that you speak with him today. If they try to tell you he is out of the office, unavailable, in meetings all day, etc., you asked to speak the the second in command. Once you get to speak with whomever, you tell them what happened at the school and give them a copy of the letter.
Then go to the school, and request to not only see the principal but the school nurse as well. Do the same thing with another copy of the doctor's order. This should eliminate the problem because the dr.s note makes it plain and clear that if they don't they are putting his life in jeopardy, and I do not think that they will want to risk being liable if anything were to happen to him.
Good luck to y'all and I hope that this never, ever, happens.

Answer 4

Send a registered letter to the school principal, school nurse and teacher, as well as some of the superintendents. They are breaking the law [avoiding the health needs of a child - would be like allowing peanuts in a classroom with a nut allergy]. You doctor needs to write a VERY strong letter which you should include. Follow up right away with each person, explaining that he could die if he doesn't see a doctor when he is hurt.

Be blunt, honest, and not as emotional as you could be!

If this doesn't work turn to the media. Especially sending registered letters and the school's refusal to help will catch their eye and really help you.

Answer 5

Email is your best ally. At the beginning of the school year, every year, you should establish email contact with the school nurse and all his teachers. School nurses should alert all his teachers of any problem she is made aware of in writing. Express your concerns. Make printouts. Keep a written record of all your correspondence. If they still don't contact you, you have a written documentation of all your attempts to keep informed. Talk to his teachers on a regular basis. Reminders are important when you have so many children to care for. Your child is special. Make sure everyone knows that. As for now, make an appointment to see the principal. Bring the doctor's statements with you, plus any record of treatment he had to undergo as a result of the oversight. It is the school's legal responsibility to take care of your son, especuially in his special circumstances. If after your meeting you still don't get any cooperation, report the situation in a formal complaint to the Texas Education Agency online. Go to the school board with your concerns and your written records. Make them aware of your dissatisfaction. Beyond that, you should hire a lawyer.

Answer 6

How old is your son?

Sounds like maybe he's going to have to act older than his age and take responsibility for his illness, much the way kids with say, allergies to bee venom, have to know how and when to use an Epipen...

Can you laminate a note from the doctor that your son can carry in his pocket at all times?

Can he carry his meds with him to school and take them himself?

Can he have a prepaid cel phone so he can call you himself whenever he needs you to help advocate for him?

Can you take a morning off work, march into the office, or the nurse's office, and make them understand?

Waiting for them to call you back doesn't seem to be working, so it's time to try another approach. Maybe a few other approaches.

Answer 7

what's incorrect with this image? you're the mum, the grown up one in this project because the little ones were little. It develop into your duty to keep in contact and to invent strategies to stay on the point of your little ones. if you're invited to the marriage you should flow and are not making any scenes. if you're no longer invited, do not flow, yet do deliver a positive present and a ideal desires letter. that isn't any longer too late to have some type of courting. Years of no contact except Christmas? it really is your fault, too. you'd be lacking a sensitivity chip because you assert 'why can't everyone flow on'. it truly is your newborn!

Answer 8

Set up a meeting with the principle and school nurse (if the school has one) bring in pamphlets or print outs explaining the disorder... tell them as politely as possible that if they fail to notify you again you will take the matter above their heads and go to the school board! Or just skip the meeting and call the school board. Good luck

Answer 9

That school is being irresponsible. You need to contact the school district administration. There should be a nurse coordinator for the district, talk to her. If she doesn't help, ask for an appointment with the district superintendent, or go to speak before the school board.

Answer 10

Documentation sent from a licensed medical physician verifying your son's condition to your State Superintendent of Schools, City Superintendent of Schools, City School Board, school superintendent, principal, school nurse, if your school has one, and every teacher at your son's school is imperative.

Your son, like diabetics, are "at risk" anytime, whether at school, church, boy/girl-scout events, or just hanging out at the mall. Anyone, child, juvenile, or adult, needs to wear a medical alert bracelet or necklace to alert others to their condition whenever an emergency occurs.

As a teacher, I can tell you that, if a parent confides a student's medical problem with me, I try to find out what symptoms to be aware of, and make every effort to monitor any unusual behavior or activity of that student.

Neglecting any student's physical or mental welfare is unconscionable to me.