I think you are thinking of Prader-Willi syndrome (sometimes shortened to PWS). It is a genetic disorder that causes the person to have an insatiable appetite (although there's much more to it than that). People with PWS tend to have hypotnia (low muscle tone at birth), poor weight gain in infancy (due to difficulties sucking), developmental delays, behavior difficulties and have very distinctive facial features. I found 2 stats about the prevalance. One said that PWS affects less than 200,000 people in the US population. The other said 1 in 14000.(not sure which is accurate) If your doctor is not worried, than it's probably nothing to worry about. However, she can be tested by a simple blood test for this syndrome.
If your daughter does have it, there is a HUGE support group program. Here are some links:
http://www.nlm.nih.gov/medlineplus/ency/article/001605.htm
http://en.wikipedia.org/wiki/Prader-Willi_syndrome
http://www.thearc.org/faqs/pwsynd.html
2007-02-01 20:03:41
·
answer #1
·
answered by trevnme 4
·
0⤊
0⤋
Try contacting the " Maury " show. He has, had cases
on like that. Check your TV Listings, he might have
something on today.
That has to be so hard for you. For one, because people
won't believe you. I do. Is there anyway you can
secretively video tape her eating habits?
Try keeping a journal of what she eats, and cut down
on the junk and fried foods.
It's going to be hard.
I'm going to try to do a search on it.
2007-02-01 20:09:16
·
answer #2
·
answered by elliebear 7
·
0⤊
0⤋
well how tall is she? That makes all the difference. My friends little boy just turned 3 is 40 lbs already but is balanced out in height.
2007-02-02 01:22:13
·
answer #3
·
answered by allaboardlearning 2
·
0⤊
0⤋
I remember on the health channel that their was a 3 yr old boy who was 80 pounds and could nt stop eating. Dont remember the outcome but here is a start. As nothing I could find hit the nail on the head.
National Eating Disorders Association (NEDA)
603 Stewart Street, Suite 803
Seattle, WA 98101
Tel: (800) 931-2237
Email: info@NationalEatingDisorders.org
Internet: http://www.nationaleatingdisorders.org/
NEDA is the largest non-profit organization in the United States dedicated to eliminating eating disorders and body dissatisfaction. NEDA aims to accomplish its goals by promoting positive body image and self-esteem. Services NEDA offers include prevention programs, the distribution of educational materials, research and a referral line.
Anorexia Nervosa and Related Eating Disorders, Inc. (ANRED)
Internet: http://www.anred.com/
ANRED’s mission is to provide easily accessible information on anorexia nervosa, bulimia nervosa, binge-eating and other food and weight disorders. ANDRED, a non-profit organization, distributes materials on topics such as self-help, prevention and recovery.
National Association of Anorexia Nervosa and Associated Disorders (ANAD)
PO Box 7
Highland Park, IL 60035
Tel: (847) 831-3438
Email: anad20@aol.com
Internet: http://www.anad.org/
ANAD is a non-profit organization dedicated to helping people with eating disorders and their families. In addition to its hotline counseling, ANAD operates an international network of support groups and offers referrals to health care professionals who treat eating disorders, across the U.S. and in fifteen other countries. ANAD publishes a national quarterly newsletter, and will mail information packets customized to individual needs upon request. It also provides educational speakers, programs and presentations for schools, colleges, public health agencies and community groups.
Screening for Mental Health, Inc. (SMH)
One Washington Street, Suite 304
Wellesley, MA 02481-1706
Tel: (781) 239-0071
Internet: http://www.mentalhealthscreening.org/
SMH is a non-profit organization that coordinates mental health screening programs nationwide, including the National Eating Disorders Screening Program (NEDSP), a large-scale screening for eating disorders, and an Interactive Telephone Screening Programs. NEDSP includes an educational presentation on eating disorders, body image, and nutrition, a written screening test and the opportunity to meet one-on-one with a health professional.
Soy Unica! Soy Latina!
Internet: http://www.soyunica.org/mybody/default.htm
An excellent bilingual website for young Latinas with a good section on eating disorders.
Eating Disorder Information and Referral Center
Internet: www.EDreferral.com
This website is a resource for information and treatment options for all forms of eating disorders. It includes referrals to local treatment centers nationwide.
Harvard Eating Disorders Center (HEDC)
WACC 725
15 Parkman Street
Boston, MA 02114
Tel: (617) 236-7766
Email: info@hedc.org
Internet: http://www.hedc.org/
The Harvard Eating Disorders Center is a national non-profit organization dedicated to research and education, and gaining new knowledge of eating disorders, their detection, treatment and prevention to share with the community-at-large. The web site includes information about eating disorders, help for family and friends, resources and a listing of events and programs.
Overeaters Anonymous (OA)
World Service Office
PO Box 44020
Rio Rancho, NM 87174-4020
Tel: (505) 891-2664
Email: info@overeatersanonymous.org
Internet: http://www.overeatersanonymous.org/
OA is a non-profit international organization that provides volunteer support groups worldwide. Modeled after the 12-step Alcoholics Anonymous program, the OA recovery program addresses physical, emotional and spiritual recovery aspects of compulsive overeating. Members are encouraged to seek professional help for individual diet and nutrition plans and for any emotional or physical problems.
The Renfrew Center Foundation
475 Spring Lane
Philadelphia, PA 19128
Tel: 1-800-RENFREW
Email: foundation@renfrew.org
Internet: http://www.renfrew.org/
The Renfrew Center Foundation is a tax-exempt, non-profit organization promoting the education, prevention, treatment and research of eating disorders. The Renfrew Center Foundation is funded by private donations and by the Renfrew Center, the nation’s first freestanding facility committed to the treatment of eating disorders.
For More Information:
For more information, contact your local Mental Health America affiliate or the national Mental Health America office.
2007-02-01 20:10:49
·
answer #4
·
answered by agcgartner 6
·
0⤊
0⤋