There are many informative websites about the end of life and what to expect. There are also support groups where you might find people who are in a similar situation.
My son has a rare and deadly cancer also and many of the patients with this disease that we knew have passed away or are facing the same challenge that you will. It is very hard to lose these special young people, but I know that the majority of them really live their lives literally until the last few days. It may be because they are young, but I know one 16 year old that went hunting and than went to the Prom before passing away a few days later, I know another 16 year old that had a music studio and was recording music up until a few days before passing away, I know a young lady who totally defied death and refused to give in at all even after being on hospice off and on for two years (she has since passed away, but was an incredible inspiration to all), I know a young woman right now who has mets to her brain and there is no more that can be done traditionally for her (she is too stubborn to even think of giving up - and is taking complementary medicines). So, it is possible to survive beyond the odds, beyond the statistics just by sheer will power. There is always hope.
But, I do understand your desire to know what could happen . . but remember, everyone is an individual and there is no way of really knowing how long you will or will not survive.
ACOR Support Group List
http://listserv.acor.org/archives/stomach-onc.html
MedLine Plus: End of Life Issues
http://www.nlm.nih.gov/medlineplus/endoflifeissues.html
NCI: End of Life Care
http://www.cancer.gov/cancertopics/factsheet/support/end-of-life-care
A Dying Persons Guide to Dying
http://www.acponline.org/public/h_care/dying-gd.htm
Death and Dying
http://www.merck.com/mmhe/sec01/ch008/ch008a.html
Dying Well
http://www.dyingwell.org/
NCCN: Advanced Cancer and Palliative Care
http://www.nccn.org/patients/patient_gls/_english/_palliative/contents.asp
Guidelines for Palliative Care
http://www.nccn.org/professionals/physician_gls/PDF/palliative.pdf
Cancer Care: End of Life Issues (talk to a social worker)
http://www.cancercare.org/get_help/special_progs/end_life.php
2007-01-28 11:02:48
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answer #1
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answered by Panda 7
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Wow, I am so sorry you have received this kind of news. I'm sure it's been quite a shock. If you have a church you attend, there can be a lot of support from your church family. Even if you don't, starting to church would bring you comfort. Whatever your beliefs, I know this is a scary time and I wish you peace and as much comfort as possible.
2007-01-28 16:58:32
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answer #2
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answered by Anonymous
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Whatever it is like, I wouldn't worry about it. Instead go out and enjoy your family and friends. Move away from the computer and do the things you always wanted to do. How can you ask such a questioin on here. Like anyone who experienced dying is going to respond?
2007-01-28 16:54:11
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answer #3
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answered by ebear 2
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This is in no way a good way to go. Im sorry to hear about it. My buddys mom died from this about 2 years ago. She died at home on a morphine drip. Not pretty.
2007-01-28 17:00:41
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answer #4
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answered by Sowhat 3
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My grandfather died from it and all the doctors did was give him plenty of pain meds.
2007-01-28 17:00:13
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answer #5
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answered by Dotr 5
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hopefully, not too bad.
I will pray for you
2007-01-28 16:51:56
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answer #6
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answered by sunny_day_grl 3
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