Is anyone suffering advanced stage lyme disease and getting no help?

Question

I've been battling this for years, Gone to several doctors and suffered needlessly. Now I am going to a Lyme literate doctor snd hopefully start to feel better. Lyme is now considered to be the great mimicker of all diseases. RA, chronic fatigue amd ever MS are more often misdiagnosed. I have a lot of insight on this subject if snyone should need medical attention

http://www.lymeinfo.net/lymefiles.html

Go to this link and you'll be surprised at what you read. Hope this is helpful

I have been diagnoses with chronic fatigue and I have had many diagnostic tests...brain MRI, blone scans, MRI of my wrist and several blood test. The blood test for lyme did come back positive but most conventional doctors ignore false negative and even positive. I have cyst resistant lyme now so even antibiotics useless. It is very important that you see a lyme litterate physician. I am seeing a homeopath here in CT and he has been very helpful. the cure is a very long road but you have to be patient and in most cases, you will feel worse before feeling better. I have been fighting this for years so I have nothing to loose. Be your own advocate!

I'd also like to add that I have spent thousands of dollars going through the revoling doors of several doctors and getting the same results. They can see things on films, scans, etc but no answers. One of the worst disasterous things I hear quite often is that people that are diagnosed with CFS are almost always sent to a shrink because these so called trained doctors can't figure it out. That is a generic diagnosis when they can't prove anything and still people suffer needlessly. It is said that lyme is the great immitator of several diseases. I hope that anyone out there that suffers with debilitating fatigue or any other symptons that have no explanation, seek help from a doctor that thinks outside the box. I am 49 now and am hoping I have a few years left in my life that is worth getting up for. Another excellent book to look into is:
http://www.lymebook.com/
It tells it all and give people the optiion to look at all treatments to consider. I really hope this helps all of you!

Answer 1

battling level 3 lyme myself. i got bit by two ticks last labor day and was diagnosed in december already at level 3. full involvement of joints, especially knees, to the point that i can no longer climb stairs and if i sit for a few minutes my knees hurt so bad standing up i just about cry. heart involvement with arrythmia- i have had coronary spasms for years so already have a cardiologist who is following closely for heart damage from the lyme. the worst is the brain involvement... i have always had a great memory and been very sharp and alert, but with this disease you just lose it. i can no longer concentrate and focus for more than a very few minutes, i get disoriented easily, i forget things and i simply can not process my thoughts any more in a coherent manner. i avoid driving any more than i absolutely have to because i find myself getting "lost" (disoriented) even on familiar stretches of road. i am on antibiotic treatment, but there has been no improvememt and a stronger antibiotic is going to be tried in the hopes of getting a remission. i never knew lyme disease was like this and now i try and educate people so others know just how devastating this disease is.

Answer 2

ought to you describe a number of your indications to me. I even have those days been clinically determined woth C.F.S and that i'm no longer confident, i haved had many scientific tests and while i glance lower back in my youth i grew to become into continuously suffering with an infection of a few type. I even have each and all the indications of C.F.S. and rather experience as though i'm in lots soreness each and every so often and so uncomfortable in my very own epidermis that it isnt usual. Any innovations could be favorite.

Answer 3

Would you describe a few of your symptoms to me. I have recently been diagnosed woth C.F.S and i'm not satisfied, i haved had many scientific tests and when I appear back in my childhood i was perpetually scuffling with contamination of some variety. I've all the signs of C.F.S. And in reality consider as though i am in so much pain many times and so uncomfortable in my possess epidermis that it isnt usual. Any know-how could be favored.

Answer 4

could you describe some of your symptoms to me. I have recently been diagnosed woth C.F.S and i am not convinced, i haved had many medical tests and when i look back in my childhood i was always battling infection of some kind. I have all the symptoms of C.F.S. and actually feel as though i am in so much pain sometimes and so uncomfortable in my own skin that it isnt normal. Any information would be appreciated.

Answer 5

I just read a new article about fibromyalgia and MS and other conditions. it interested me very much. Here it is:
http://www.canlyme.com/

Also, there is a new discovery, I am not sure about it:
http://www.mercola.com/2000/jul/23/bee_venom_lyme.htm

Answer 6

Dealing with it myself right now. Horrible, absolutely horrible. Antibiotics!
Have had everything checked.