i have had been diagnoised with tarlov cysts. i seen a nuerosurgeon today and he stated i have inflammation of my joints. i have severe lower back pain and have incontinence and also have had a urinary tract infection. i can only stand at the sink for 5-10 minutes and it feels like my back sweels up to the point that i have to sit down. i also have pain from my back to my feet. he denied me pain medication and i am really suffering. he stated that i got the tarlov cysts from birth. from what i have read this don't seem possible. i realize dr's are not to educated with this rare condition and they look at me like i am crazy. i really don't know what to do. has anyone experienced this or have any advice for me because i don't know the next step to take. he suggested i go and get steriod shots in my back but from what i read it with only be temporary relief...someone please help..
2007-01-18 17:02:48 · 2 answers · asked by Anonymous in Health ➔ Diseases & Conditions ➔ Skin Conditions
I'm so sorry you are having such problems! Most times, tarlov cysts cause no symptoms and you are one of the unlucky ones. Those who do have symptoms find that the problem occurs usually after experiencing a shock, trauma, or some sort of exertion.
Most treatments are temporary:
draining the cyst
corticosteroid injections
drugs for chronic pain and depression
injecting fibrin glue into the cyst
However, do not lose hope! A very experienced neurologist can do a resection...surgical removal of the cyst. The resection would give pain relief and prevent further neurological damage (since the cyst would no longer be there to press on the nerves). Some even better news is that once removed, the cyst will not come back! If your neurologist is not experienced enough to do this, please ask for a referral to one who can. You should not have to suffer like this! If he won't or can't refer you to someone, please call your family doctor or contact a hospital in your area and they might be able to give you the name of a neurologist who can help you! Good luck!
2007-01-19 10:55:17 · answer #1 · answered by ilse72 7 · 3⤊ 0⤋
You should research it.. Tarlov cyst - Wikipedia, the free encyclopedia
2016-03-14 07:49:11 · answer #2 · answered by Karin 4 · 0⤊ 0⤋