bad case of rsd, need a recognized expert in this?

Question

I wrote in once about my daughter having rsd(reflex sympathetic dystrophy). What I didn't get to say was that she's had it since May 2004. Her arm is bent and the hand is deformed with 5-6 inch nails. The hand can not be touched by anyone. It hasn't been washed since surgery. She's been on may pain meds. and many neurological meds. but no help. Her first treatment with the pain block in the neck caused 2 trips to the emergency room with excruciating pain in the head and back. The doctor would not give her anymore blocks for fear of what could happen a 2nd time. She's in extreme pain daily/nightly. All 6 doctors she's seen said hers is the worst case they have ever seen(but of course this is georgia). So i want to know how can someone be treated if the doctor can't touch the hand for examination? He's got to be an expert and know the solution. Remember the surgery was 2 years and 8 months ago. The nerves has deteriorated more. She can not stretch the arm either. Is there still hope?

Answer 1

REALIZE I AM NOT A DOCTOR, but I have finally gotten over RSD.

I was told that it was all in my head. I was told I was faking it. I was finally sent to a specialist. They gave me a lot of pills, pills for the pills, and pills for those pills. They want to give me the block in the back, but I refused because it can cause paralysis.

HOW I GOT Better.
I stopped taking the pills. I forced myself through it. They had this sensitivity machine filled with small particles of corn husk? I think it was.

Best thing that you can do for her is help her, push her more and more, and most of all pray for her.

I am sorry, good luck.