I have fybromyalgia and wondered if anybody knows best way to highlight the problem in the uk?

Question

In the uk fybro is not a common wel know problem, but im trying to get it hightlighted in the uk and push for better advice from docs,

its not realy a illness but nobody really know what casues it, but alot of suffers like myself have to live on painkillers and many other tablets, this does not get rid of the pain but eases it, it leaves you tired all the time, limits what you can do every day, at the momment there is no know cure but we ilve in hope, any more question feel free to ask or eamil me, thanks for your intrest

Answer 1

there are fibromyalgia self helpgroups about here (n/i) i think the best way to start your own may be with 360 groups as you are already familiar with yahoo if you get a group going in you own area however you can go for charity status and get helpwith info sheets and other fundings through the national lottery.but in this way you would need dedicated people to act as chairman ,treasurer,secretary and the likes.

Answer 2

I have heard a theory. An imbalance of serotonin and noradrenaline can cause, amongst other things, depression. Dependent on the nature of the imbalance some people get significant 'somatic' symptoms of depression, those being non-specific aches and pains, trouble sleeping etc.
The theory I heard was that if the imbalance causes depression with or without pain, could that imbalance possibly cause pain WITHOUT the depression?
It is a sound theory to me, and I know that some pharma companies have trials running for their SNRI anti-depressives to see if they work in fybromyalgia. The doctor I heard talking about it had seen some very successful results using these drugs.

Answer 3

Magnesium, vitamin B12, B6, Folate, Vitamin C are very useful.
In portugal there is few information too.

Answer 4

What is it?