Are there any groups or anyone who will talk to me about my husbands Multiple Sclerosis?

Question

I am 24 and my husband was recently diagnosed with MS, i just need to talk to someone, I am going out of my mind. Does anyone know of any online support groups or anyone I can talk to that has experienced this? Thanks- you can e-mail me personally or talk to me through here

Answer 1

I'm sorry to hear about your husband -- I too have MS. I would strongly suggest you contact your local chapter of the National Multiple Sclerosis Society (http://www.nmss.org). They have many support groups and local meetings and events you can attend, as well as advice on doctors, home care, living with MS, etc. A great resource -- always my first stop!

If you like web surfing, you can set up a Google Alert (http://www.google.com/alerts) and set an alert on "multiple sclerosis" and you'll be informed any time a new document is posted to the Internet that contains that search phrase. Keeps you in the loop on all the newest information and discoveries days before it hits the paper.

Feel free to e-mail directly if you have more questions. Good luck, and hang in there!

CJ

Answer 2

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Answer 3

My son used to be identified with MS whilst he used to be 19 and he's now 22. He used to be placed on Avonex and his injections made him very unwell. As a question of truth, he nonetheless will get flu like signs from the pictures that final approximately 24 hours. His leg muscle groups are very sore on the injection web sites. We more commonly ice them earlier than giving his injection. He additionally takes an Aleve after his injection, to support with the aspect results he is aware of he'll have in a while. His general practitioner stated that is all flawlessly natural and that a few humans simply have those aspect results. True, whilst my son will get particularly unwell, he has to have the IV cures additionally, however he handles those very good. He has had a whole of three assaults and that's in four years! And, two of the ones had been since he acquired overheated (which he knew used to be a mistake within the first location). I used to be afraid of ways my son could manage having MS. Thank God he's the powerful one within the loved ones who lives every day to the very fullest. He plans for the longer term, simply as though he had not anything fallacious with him. He might be attending graduate institution within the Fall and I could not be extra pleased with him. He works on getting and retaining himself within the pleasant viable bodily form he may also be in. That may be very foremost. He additionally watches his vitamin very cautiously. The worst factor your husband can do is to quit on existence. He demands to keep on with matters simply as though not anything is fallacious! Why is he giving up? His loved ones will have to keep out of this. It is his resolution to make and it feels like he'll be absolutely depressing staying at house and annoying approximately if and what would come later (keyword phrases are if and later) on with this ailment. He would lead an overly efficient existence and outlive this ailment via leaps and limits! Why now not deliver it a take a look at? Unless he's crippled and his MS has long past into an overly extreme level, he may not be equipped to move on incapacity. There are thousands and thousands of humans with MS who lead complete and efficient lives. I cannot think that your husband used to be simply identified and now he's giving up on existence. What a disgrace! As for you, I can wholly recognize how and why you're going bonkers! It could force me loopy, too. Especially due to the fact his loved ones has any such large aspect in making his existence choices for him! It sounds just like the either one of you would improvement from a help institution. There are such a lot of of those in the market and my son is always speaking with different humans who're experiencing the equal matters he's. There also are help companies for loved ones contributors, which his loved ones will have to become a member of. They probably equipped to look that what they're doing is fallacious! Anyway, pleasant of good fortune to all of you!