anyone else out there who still seems to have colitis after having a sub-total colectomy???

Question

I had a 2 part sub-total colectomy surgery... & have only had 1 (literally) day since then that I haven't had a flare up of my colitis. Though the surgeon did leave a small "cuff" (by the anus) which can still have u.c., the rest of my colon has been removed... & yet, I still seem to have a chronic flare up of colitis (or pouchitis?!? not sure which). I have appx. 15 bowel movements on a good day... sometimes up to 30+. Does anyone else out there have this problem... or has anyone had the problem in the past & have any recommendations (diet, exercise!??!) that you think might help? Also, for those of you who have had this procedure (regardless of how you feel now) are there any supplements you take now that you would suggest to others who have had this procedure? Thanks much folks! Looking forward to hearing from you!

Answer 1

I have not had this procedure.
I do have UC and it's dreadful!
I understand about the married to the toilet.

Stress and over exerting myself makes it worse.
AS for vitimans, I take Evening of Primrose, and MSN, and any other anti-inflamitory herbs i can find.

I drink ginger tea, I find this very calming.

I have a list of "safe" foods I use when the flare ups are bad.
yogart, white breads, dairy is safe for me, eggs, chicken and beef, potatos. I also use Whey protein mixed n with my yogart to get enough protein, it's hard to feel like eatting when you know what you have to go thru to eliminate it from your system.
Soft Bland Food!

I use a lot of Imodium AD
Bean-O and
Gas-X

It seems to help keep things a lot calmer.

good luck......I feel for you and wish you the best, and hope your surgery is your answer.

I have found some groups on msn that have given me some comfort groups.msn.com/ColitisCrohnsDiseasesupportgroup/messages.msnw -
www.care2.com/c2c/group/crohnscolitis
www.ccsg.org.za