Can someone share with me their experiences with Crohn's disease flareups.?

Question

I live with my 29 year old daughter who was diagnosed at 19 years of age and the flare ups are frightening. We do organic as much as possible and so far, the doctors put her on steroids for flare up.

Answer 1

Hi,
First let me start by saying, it's not really your doctor's fault but he is an idiot. Chohn's is a menacing disease that requires very aggresive biological and spiritual treatment. There's really not a lot that your doctor can do for it, (thank God) because I don't want him or any other MD around natural treatments. No offense but MD's are fine right where they're at scientifically. If a heart attack is the problem I'm pushing all the chiropractors out of the way of the MD because they are, by their very nature; macabre and that's the way you want your doctor when he is cutting into your chest. So! Chrohn's is not an acute problem like a myocardial infarction. So you need the other kind of doctor. I even have his name for you!! Dr. Jordan Rubin. He had Crohn's at the age of 19 and almost died. Died meaning he contracted numerous near-debilitating illnesses as a result of the Crohn's and then he got all better. The name of the book he wrote is "Patient Heal Thyself" It describes his ordeal and then the different, and exciting paths that it took him down as far as other illnesses.

NEXT!!!

Answer 2

I don't have Crohn's but I do have rheumatoid arthritis so we have sister diseases. I have been on methotrexate. I hated it. My hair fell out. I was worried about getting cancer. I have been on a ton of things. In February of 2006, I quit all of the disease-modifying anti-rheumatic drugs because I was having surgery to remove fibroids. After surgery, I started my own regimen of vitamins, minerals, and alternative non-prescribed therapies after doing alot of research (and I don't mean a message board full of lay people; I am an RN and put a lot of thought and time into it.) A month ago I added four more things and I have to say that since last year and even more so now, I have felt far better than I ever did while taking the prescriptions. I visited a rheumatologist in December just to get x-rays. I told him that my husband and I were trying to have a baby. he said I shouldn't bother and he wanted to put me on Arava. This is the same story everywhere. Since the only thing they can do for me that I can't is prescribe drugs, I am not going to go. I started taking DHEA and increased my fish oil and I see a big difference. I urge you to become your own manager and try to find a way to calm down your immune system. I would rather end up in a wheelchair than get cancer at 40 and leave my child an orphan.

Answer 3

I've had Crohn's disease (diagnosed) over 43 years. I am listing the best source for cause and effect and new treatments you will find. I acquired avascular necrosis and the bones in my hips died. I had to have complete replacement in one hip and I had experimental bone transplant in left hip. It was the most successful for me but not necessarily for others unless they really take care of it. Mine was done at Emory Clinic/Hospital in Atlanta, Ga. I have also had 6 bypass surgeries.

It's usually an hereditary disease and chances are others in your family will contract some form of this disease. It can affect any part of your body from your mouth, organs, intestines, and anal passage.

What I found for myself was to eliminate all raw vegetables and fruits except bananas, grapes, mangos, cucumbers, watermelon, and very tender, ripe cantaloupe,

Absolutely no pepper or ground spices. No olives, milk, cheese, cottage cheese, anything fried, anything spiced, raw or cooked nuts, and any green vegetables except steamed broccoli crowns without stems and steamed brussels sprouts or steamed cauliflower. No corn bread, no popcorn, no "snacks" having any seasoning. Switch to canola oil, Heart Smart margarine, and olive oil only. No prepared, canned soups such as tomato or mushroom soups.

Keep a food diary and you will learn how to add back foods. Just be careful. For example, I have found that I can treat myself to a salad if I eat soft, rather bland foods for a week. The salad becomes a real treat.

Don't be embarrased by the fact that you will soon scout any bathroom anywhere you go as a first order of business. It's not that big a deal to anyone except you.

Now, tell her not to become discouraged about this. She can live a good, full life when she learns to manage Crohn's disease. Don't let the disease manage her. One has to go about one's own business and allow only one 5 minute pity party per week.

Read the following for the best advice you will get about the disease and how to live with it. Good luck. Have a great life. I know I have and will continue to do so.