A question about fibromylagia?

Question

Been to several doctors lately trying to find out why I hurt, lots of tests, no answers. I research it myself, everything points to fibromylagia. I ask people here on answers, everyone says fibromylagia. I go online, find many informative sites on the subject. I ask my doctors( a rheumatologist and two neurologists) and they all say fibromylagia is not a real disorder, they don't treat it, won't waste time looking for it. So I do some more research and find out the american medical community does not recognize fibromylagia as a disorder, but everyone else does , so I'm confused and here's my question. Is fibromylagia a disorder? If so, why is it not recognized as such by American doctors? If not, what are all these people suffering from?I know there are many people on this site familar with fibromylagia, what was your experience with the doctors? Did any tell you that it is not a disorder? Thank you for your input.

Thanks for the answers,,,,, super steve, I'll get you an adress in a bit,,,,,,sharon, yes, my feet hurt,,,, Starcast ,thanks, maybe I need a new doctor

Answer 1

I was diagnosed with it back in '98 or '99, so it's real. Some Dr's still do not accept it as being real however.

"What Are the Symptoms?

Although no two people with fibromyalgia experience the same symptoms the exact same way, people with fibromyalgia do experience similar symptoms.

* Pain is the most prominent symptom. It usually involves "tender points" on the body where pain seems the greatest.
* Fatigue and sleep disturbances occur in about 90% of people who have fibromyalgia.
* Depression and anxiety is common in many people with fibromyalgia.
* Cognitive difficulties or fibro fog can occur, characterized by feelings of confusion, lapses in memory, word mix-ups and difficulty concentrating.
* Migraine headaches, abdominal pain, bloating or alternating constipation and diarrhea (irritable bowel syndrome), skin color changes, tingling limbs, jaw pain (temporomandibular joint (TMJ) disorder), and restless leg syndrome are common."
http://www.arthritis.org/conditions/DiseaseCenter/Fibromyalgia/fibromyalgia_symptoms.asp
http://www.mayoclinic.com/health/fibromyalgia/DS00079
http://www.fmaware.org/

Answer 2

The doctors that are telling you fibromyalgia isn't real, need to go back to medical school. It is recognized in the medical community as a real condition.

From the MayoClinic:

quote "Fibromyalgia is a chronic condition characterized by fatigue, widespread pain in your muscles, ligaments and tendons, and multiple tender points — places on your body where slight pressure causes pain. Fibromyalgia is more common in women than in men. Previously, the condition was known by other names such as fibrositis, chronic muscle pain syndrome, psychogenic rheumatism and tension myalgias." end quote.

From The National Pain Foundation:

quote "Approximately 3.7 to 6 million Americans suffer from fibromyalgia, a condition that causes widespread muscle pain, poor sleep, fatigue, and other associated symptoms (Arthritis Foundation, 2001; Wallace and Wallace, 1999). The term fibromyalgia is taken from three Latin and Greek words: fibra, which means fibrous tissue (i.e., tendons and ligaments); myos, which means muscles; and algos, which means pain. Fibromyalgia is considered a syndrome, or collection of symptoms, rather than a disease. Other common features of fibromyalgia include headaches; temporomandibular joint (TMJ) pain (i.e., jaw pain); morning stiffness; a sensation of swelling, numbness and tingling; irritable bowel syndrome; irritable bladder symptoms; restless legs; memory and concentration difficulties; dizziness or sense of imbalance; and sensitivities. Like other chronic pain conditions and syndromes, some people also may have symptoms of depression and/or anxiety; however, neither depression nor anxiety is known to cause fibromyalgia." end quote.

Fibromyalgia IS real and recognized throught out the medical community. Doctors who still do not believe are few and far between.

Answer 3

it is a real disease and it is recognize as such...the problem is diagnosing it can be tricky...it may be misdiagnosed as Lupus or the flu so it may take a long time before a doctor will actually confirm it. ask your doctor to do the 7 point test on you, i believe if my memory serves me well it is a test of pain spots located throughout your body that tend to be always sore, this may help in a diagnosis. i am sorry it is so hard for you...my girlfriend is ill with the same thing and it can be very debilitating. if you dont mind giving me your e-mail address i would gladly get some info and send it to ya.

i pray everything works out for you

Answer 4

I kept telling Drs. that i hurt all over and they didn't seem to listen to me and had nothing to say. Finally i saw a Dr. and when i told him how i hurt all over and right away he told me it is Fibromyalgia. Doesn't look like there is anything that can be done for it. I just know it is miserable. I need to ask you if the bottom of your feet hurt when you are standing for awhile?

Answer 5

First and most important, don't get fibromyalgia handled through a rheumatologist. A lot deal with it after they will have to now not. Fibromyalgia will have to be handled through an Internist and after getting visible the internist, your General Practioner can deliver you the prescriptions you want. This used to be informed to me through a Rheumatologist who has fibromyalgia. The first-rate drug for fibromyalgia comfort is Valium, it has the least facet-results and that honestly works. Muscle relaxants do not paintings on myalgias considering the fact that this is a difficulty with the apprehensive process, now not the muscle groups themselves. If muscle relaxants paintings for a pal or loved ones member, you are going to be pressued to make use of them and "get on with lifestyles." However getting again to therapy, Doctors are reluctant to begin with Valium. Tricyclic antidepressants also are very mighty and the Internist will most probably begin you off on a tricyclic. It will aid with the affliction plenty. However the tricyclics have such dangerous facet results for a few individuals (now not all however a few), they quit taking them. Tricyclic antidepressants aid the frame make extra neurotransmitters and consequently aid the nerves cross signs alongside. Beside being mighty, they're the most cost effective. If you do endure from dangerous facet-results from tricyclics, you are going to most probably be switched to valium. But internists do not love to begin with Valium. There are well explanations for doing so. Valium is the one anti-anxiousness that is helping with myalgia loved ones. Secondly Physicians have no idea why it really works at the same time different anti-anxiousness medicines don't. To complicate the predicament a few Physicians prescribe different anti-anxiousness drugs for the placebo outcome which mainly approach they can not discover some thing flawed with their sufferer's again. The difficulty with Valium is that at the same time it really works and has fewer iside results, the frame builds up a tolerance to the factor it does not paintings anymore. So the Internists often begin you off on tritricyclic antidepressents considering the fact that your frame does now not construct up a tolerance to them. You gets recommendation from individuals is to head see a Physiotherapist or a Chiropractor. Physiotheyapy mainly does not do so much well for anything induced through the apprehensive process. However registered Physiotherapist who offers therapeutic massage cure and registered therapeutic massage therapists will deliver you comfort. Furthermore your coverage enterprise pays for registered therapeutic massage therapist. Massage therapists who're licensed take a 3 12 months path and be trained in which the entire "elements" are and be trained learn how to paintings alongside a certain nerve. A registered therapeutic massage therapist or a physio who offers therapeutic massage cure will deliver you affliction comfort, the difficulty is that it does not final quite a lot of days. But they're a godsend if in case you have fairly dangerous affliction. However, such a lot long term myalgia sufferers grow to be on affliction killers. There are approximately 1 self aid and aid corporations on the web. It's well to take part considering the fact that you are going to see others had been by way of the approach. Should the time for affliction killers come, belonging to a self-aid organization is helping you through providing you with a truth assess while "step forward" affliction begins to occur. They will inspire you to return to the Doctor to peer what has modified. The Doctor will difference your meds and probably up the dosage while you get step forward affliction, however what they do not wish you to do is hoard tablets on now not so dangerous days and use them over and above your steady quantities for dangerous affliction days. Self aid corporations are well at reminding you that step forward affliction will have to be handled through a Physician, now not your self. If your fibromyalgia will get worse, there shall be a few events you will not be competent to do anymore. Support corporations additionally aid while this occurs and the individuals there'll deliver you hints on learn how to speak on your loved ones and peers in order that they realize why you can not do what you used to or while it occurs that you just might do anything every week in the past however cannot do the equal recreation in these days considering the fact that you're in extreme affliction. You would possibly get plenty of recommendation from individuals who've again muscle issues that have the equal signs however aren't truly myalgias. Some of them may also be fairly dogmatic and albeit insulting and inform you how they obtained rid of the disorder. The quantity one inspiration with a bullet is recreation. Exercise has no outcome and in a few circumstances can do extra damage than well. There are books that exhibit what form of streching would possibly aid. Most web aid corporations have a best letter you'll be able to deliver to individuals who deliver you recommendation (frankly it reminds them they aren't medical professionals and their recommendation can reason you damage). I've passed it out to dozens of peers and loved ones who've again issues and get irritated why I may not take the equal tablets or remedies they do. The letter explains how fibromyalgia is exclusive and explains why what works for them is not going to give you the results you want.