I'm on oxycontin.. I have Lupus and Fibromyalgia.. I'm still in horrid pain...?

Question

I was diagnosed with Lupus(SLE) this year and Fibromyalgia a few years ago, but believe it all started after a bout of very serious(hospitalized because of spleen and liver) mono when I was 17yrs old. I have been on percocet 10/325 every 4-6 hour max 4 day for the last 4 YEARS.. recently it got switched to 20 mg of oxycontin twice a day with oxycontin IR 5mg also twice a day... problem is it's still not working and I'm sitting here typing with tears running down my cheeks... I put a call into my doctor..no call back yet... It's full body agony.. I can't take this anymore...I don't know how to tell my doc I need more meds or different, or something... I have tried yoga, nerve blocks, operations, therapy, etc... in the past few years... nothing works, I have three children who need me and all I want to do is curl up in a ball and die... I don't know what to do anymore... Can anyone advise?

I was on prednisone for 11 yrs.. as a result I have osteopenia( swiss cheese for bones)
I just got a call from the nurse, not the nice one, even though the dr. said to call if it didn't work so he could adjust the dose, she says he said he's not changing anything and to call my rhematologist( who doesn't want to be responsible for pain management) if that's not ok with me...
Plus I did go to a pain clinic for 3 yrs, after many different treatments, nerve blocks, operations etc..., they tried to get new equipment for their office by saying I needed to have a certain operation( that I found out I didn't need from 2 dr.s) so I stopped going there.. Primary doc( the one I tried calling) tried to get me into 3 separate pain clinics.. all have said they can't do anything for my condition except meds, too advanced in disease too help, so they won't take me. That's why I get meds from primary now... and now no help is coming, who knows if she even talked to him..probably not

Answer 1

Here's some all-natural supplements that are very helpful when managing both lupus and fibromyalgia.

GLA Complex: nature's steroid; insulates the fibrous sheath of the nerve bundles - very important for lupus

Vita-C: strengthens the integrity of connective tissue; antioxidant; anti-inflammatory

NutriFeron: strengthens the immune system

OsteoMatrix: muscle relaxant

Zinc Complex: protects skin & organs; promotes healing

Hope this is useful and feel free to contact me with questions.

Answer 2

Just hang in there. Your doctor should help you monitor pain levels to find the right mix of medications for you. I have fibromyalgia as well, but my pain is nothing like what you're describing. I've been trying to find a trained acupuncturist for pain management, but I live in a small town in the midwest so that's not easy.

Answer 3

Fentonoyl patches are the important thing...they're damaging if now not taken thoroughly however they're one hundred occasions extra amazing than heroin. You will have to be admitted into the health facility instantly to get your affliction beneath manage. I might advise the ER, give an explanation for approximately the affliction and the medicines you are presently on. As approximately the patch or no less than get a few IV morphine/demorol or daladin. All of those meds will aid a lot more than oxy. (sorry approximately the spelling i am too worn out to seem up the medicines precise names) well success to you.

Answer 4

I am so sorry to hear that. My ex boyfriend has Lupus and he is on a steroid called prednazone(not sure if you spell it like that) and Lortab 10's. He says that of all the medication he has tried those two seem to ease up the pain a little more. I really hope that helps. I am so sorry to hear that and God bless you! Stay strong!

Answer 5

Try exercising and eating right, no junk food or alcohol. Try taking something called MSM. Make sure you are getting all your Omegas as well. You should not be on oxycontin, you are abusing drugs!

Answer 6

Look for a good chiropractor. I go to one that can help with almost anything! Good luck!