has anyone had any bad side effects from Tomoxiphen after thier breast cancer treatments?

Question

About four years ago I was diagnosed with early stage breast cancer, had it removed and then given Tomoxophen. the Docs decided that I didn't need chemo. After taking Tomoxophen for 8 months I develoged an allergery (severe bleeding from nose, eyes and other personal areas) and was taken off of it. So far I am cancer free but now I am having other problems such as severely deteroirating teeth and porus bones, thinning hair and have developed rhumatism in my joints. The Doc doesn't seem to know what is going on. I have had all kinds of tests and according to them I should be in good shape. Could it be the Tomoxiphen even if I haven't taken it in years? Anyone have any info? Any information would be appreciated.

Answer 1

yes, all of the above can happen when you've taken tamoxifen
also severe hot flashes. it's no fun, because technically the tamoxifen is a poison to your system and i would guess that the symptoms you are/were having are due to the drug. i think that you should go to your pharmacy and have the pharmacist pull the information sheet out so that the 2 of you can go over all of this together....the pharmacist is more or less a drug doctor so he can explain any questions you may have about it.....if i were you i think i would see another oncologist just for a 2nd opinion..
i am really really sorry that you have had to go thru all this.and i will keep you in my prayers. good luck to you.....and i hope the
information that i have provided is helpful to you.......

Answer 2

I was also put onto Tomoxiphen for breast cancer. Only took it for 6 months as it puts you into menopause. So the deteriorating teeth and bones could be because of that. I have a friend who has been on it for 10 years and no side affects at all. So I think this is a case of everybody reacts differently. I hope you get it sorted.

Answer 3

http://www.breastcancer.org/tre_sys_tamox_sideEff.html