can anyone tell some things about fibromyalgia i was just diagnosed but don't know a lot about it?

Answer 1

FMS is a neurological disorder of hypersensitivity. That means that the nervous system, for some reason, reacts to everything more extremely than it should. People with fibromyalgia feel pain more than those who don't have FMS. We're also more affected by temperature changes, smells, tastes, textures, colors, lighting, and all other sorts of things.

The degree of symptomology can change from day to day and person to person. When the symptoms are really bad, we call it being in a "flare."

By itself, FMS is not *technically* degenerative - it won't get worse over time. In practice, though, there is evidence (and I'm one of the examples) that shows that people who ignore FMS and don't adjust their lives to take it into account may end up with worse symptoms (more sensitization) than do those who do get appropriate treatment at an earlier stage.

Also, if you have FMS and a degenerative disorder, such as arthritis, as I do, the FMS will sharpen your perception of any discomfort from the degenerative condition, which may increase disability due to that condition.

It can be extremely depressing to face the reality of having a disease that is not curable, and that some people refuse to acknowledge as being very real. It is terribly frustrating to have a body and brain that can be unpredictable in their ability to perform. Most fibromites I've met (including myself) were high-performing people with perfectionist standards. "Good enough" isn't enough - we want to do things RIGHT, and RIGHT NOW!

Learning to pace ourselves and work with our bodies can make an incredible difference, and smooth out the emotional problems that can otherwise be so difficult. That can make a major positive difference in the cognitive impact of fibromyalgia.

All fibromyalgia symptoms, including "fibro fog," are worsened by stress, so the best way to reduce that (and therefore help your overall cognitive functioning) is to control the sources of stress that you can control in your life. Set firm boundaries in your life about not being around negative people. Make your home, and especially your bedroom or another room that's your retreat a special haven - a place that's purely comfortable, tidy, free of anything you're allergic or sensitive to, full of your favorite things, soft and sweet. Be very careful about getting enough sleep each night, drinking enough clean (filtered, although you don't need to bother with bottled) water, eating well, taking care of other health problems, etc. Declutter your life to the point that if you don't love if AND need it, it isn't there.

Those things have made a HUGE difference for me - and for my daughter, who also has fibro. I was diagnosed in 1993. She's 16 now and was diagnosed in 1999.

Answer 2

I feel your pain, as a fellow fibromite and as someone who has seen the mass of contradictary information out there on fibro.

The truth is, not a lot was known about fibromyalgia until recently and there are still a lot of new hypotheses that have yet to stand the test of time. It is characterized by widespread pain and fatigue. It is believed to be genetic, and possibly originating as a central nervous system disorder. Some people have found some relief by taking Mirapex (a Parkinson's drug) in high doses because it helps with dopamine. There also is believed to be a problem with oxygen absorption in the muscles, sleep patterns, and a myriad of other very physical problems. It is not a form of stress or depression, though it can certainly be aggravated by both, and dealing with fibromyalgia can often be emotionally trying like with any similar condition (which is NOT to say that you can't be happy and have fibro).

It is uncurable, but you can figure out things that make it worse or better, and that will help you live a productive life. For example, a drop in atmospheric pressure like before a cold front keeps me in bed all day - but weight training, yoga, and massage help me on other days. Your doctor is likely to try giving you sleep meds, pain meds, and antidepressants (even if you aren't depressed - though don't be surprised if they assume you are). You might also want to try massage, yoga, physical therapy, weight training, light aerobics, and/or water aerobics. I personally recommend taking a combination of magnesium and malic acid if you have muscle spasms.

However, do consult your doctor and do read real, unbiased scientific studies. There are a lot of websites and even books out there on fibromyalgia, but many (probably most) are peddling snake oil, preying on the fact that fibromyalgia is incurable and that we fibromites are often desperate enough to try anything. Do not feel like it is your fault if the miracle products/methods you try don't work. And while you should try to change your health habits for the better, be careful not to stress yourself (and your wallet) out by trying to do/try everything.

Also, consider joining an online support group or community. I recommend those on www.livejournal.com. That way, you can ask real fibromites what they have tried and what does and does not work. Plus it's a good place to vent.

Answer 3

regardless that the soreness of fibromyalgia is difficult to disregard, it can be elaborate for a few medical professionals to spot this situation. For illustration, no blood scan or X-ray can be utilized to aid realize it. Plus, a number of the signs of fibromyalgia also are determined in different stipulations, reminiscent of rheumatoid arthritis It is brought about via overactive nerves and alterations via your principal fearful procedure. Usually a health care professional will watch for the indicators of fibromyalgia to persist three months earlier than an genuine analysis is made. I wish this is helping as I do not feel this ailment continues to be but thoroughly understood

Answer 4

Fibromyalgia is a chronic condition characterized by fatigue, widespread pain in your muscles, ligaments and tendons, and multiple tender points — places on your body where slight pressure causes pain. Fibromyalgia is more common in women than in men. Previously, the condition was known by other names such as fibrositis, chronic muscle pain syndrome, psychogenic rheumatism and tension myalgias.

Although the intensity of your symptoms may vary, they'll probably never disappear completely. It may be reassuring to know, however, that fibromyalgia isn't progressive, crippling or life-threatening. Treatments and self-care steps can improve symptoms and your general health.

Answer 5

I feel for you. I was diagnosed in 1989 and it's pretty much changed my active life. I take painkillers and a duragesic patch and Neurontin to control the pain. It's the only thing that would work for me so that I can take care of my family and home. I highly suggest that if you are working now, and your fibro gets so bad that you have to leave, that you remember to file for disability within 6 months or you will be denied. It is now an accepted condition to file for disability. I never did so I rely on my husband, which is no fun. So I work for myself now doing stuff on the net. I wish you the best of luck.
PS. If you do end up filing disability in the near future, remember that the social security admin ALWAYS denies your first claim, unless you tell them you cannot get out of bed in the morning, it will be denied. Good luck!

Answer 6

Fibromyalgia is a common nonarticular disorder of unknown cause characterized by achy pain, tenderness, and stiffness of muscles, areas of tendon insertions, and adjacent soft tissues. Diagnosis is clinical. Treatment includes exercise, local heat, and drugs for pain and sleep.
Please see the web pages for more details on Fibromyalgia.

Answer 7

Hi There

Even though everyone here is saying it's not curable, it is period! It will take some time and some dedication and education on your part, but you can beat it and I dont care what anyone here says. Ive helped educated and seen people heal themselves from big diseases of all types! Search and find your own answers in life and remember anything is possible!

Here are some tips to help the healing process. #7 is the most important step.

Causes of Fibromyalgia
There is not one specific cause for primary fibromyalgia. Certain common features among fibromyalgia patients provide a better idea as to the primary factors that are involved in its onset, however. These include dental amalgam fillings, hormone imbalances, infection, neurotransmitter imbalances, sleep problems, problems with the thalamus gland, and physical trauma. Other factors that can play a role include chemical and food allergies and sensitivities, chronic stress, and dysfunctions in system.muscle metabolism.

Conventional physicians treat fibromyalgia primarily through the use of painkiller medications. Such an approach fails to address the multiple causes of fibromyalgia, and also carries with it the risk of serious side effects. In addition, this symptom care approach is typical of conventional medicine`s failure to properly understand chronic health conditions such as fibromyalgia, which explains why it so often fails to successfully treat such conditions. Practitioners of alternative medicine, on the other hand, focus their treatment approaches on the multiple factors involved in fibromyalgia in order to eliminate them, while simultaneously stimulating the body`s ability to repair itself. What follows is an overview of some of the most common therapies they employ in order to achieve those goals

Quick Action Plan for Fibromyalgia


1. A healthy, whole foods diet is an important part of any fibromyaglia treatment program. Emphasize organic foods, especially fresh, organic vegetables, and drink plenty of pure, filtered water throughout the day. For even more benefits, consider adopting a vegetarian diet, which has been shown to significantly reduce fibromyalgia symptoms.

2. Essential nutrients to help treat fibromyalgia include vitamin C, vitamin E, niacinimide (vitamin B3), eicosapentaenoic acid (EPA-an essential fatty acid), magnesium, selenium, zinc, and the lipotrophic factors inositol, methionine, and phosphatidyl choline. The nutritional supplements cetyl myristoleate and SAMe are also highly beneficial, as it the Meyers Cocktail, which must be administered by a trained health care practitioner.

3. Herbal remedies for fibromyalgia include cayenne and chamomile. An herbal combination of tinctures of black cohosh, celery, dandelion, devil`s claw, Echinacea, and licorice in equal parts, can also be helpful.

4. Homeopathic remedies for fibromyalgia include Arnica, Bryonia, and Rhus. Tox.

5. Various bodywork therapies, such as Massage, Acupressure, Bowen Therapy, Feldenkrais, myotherapy, Rolfing, Shiatsu, Therapeutic Touch, and Trigger Point Therapy, can provide significant relief of fibromyalgia pain and speed healing.

6. Mind/body medicine therapies such as biofeedback, guided imagery and visualization, hypnotherapy, and meditation, can help relieve chronic stress, thereby soothing muscle tension and reducing pain

7. Be sure to do a colon and liver cleanse to clean out the toxins in the colon and the blood. Most important step is cleansing and detoxifying the body.

Email me for more info.

Best of health to you

Answer 8

the only thing i do know about it, due to my mother having it for some time now--is that it is quite painful. it attacks every joint in your body, there is no cure and plain pain killers do not effect it at all. the only comfort my mother ever gets is being in water, like a pool or jacuzzi. and for pain relief prednizone is the only thing that really helps her. she was diagnosed a few years ago, and says the pain is mostly unbearable so i wish you luck.

Answer 9

It's potentially very painful and incurable. A Google search for it will yield a great amount of info. You can also search for support groups in your area.

Answer 10

it is called the internet. in the time it took for you to type this you could have searched for it and found everything you wnated to know.