what is a good website of Marfan Syndrome?

Answer 1

Hello Jen K,

I am not sure if you need an overview of the syndrome or something specific.

So, here's a few, and I am hoping one of them fits your needs.
If none of these work, please email me through my profile,
and I will continue to work on it!

[These came from MedlinePlus [ http://www.medlineplus.gov]
[Other links are at the site...Marfan Syndrome]

National Marfan Foundation
http://www.marfan.org/nmf/index.jsp
Good explanation/overview, with links to support
services, education and awareness, and a marketplace,
links for professionals, clinical trials, and conferences
and events

What is Marfan Syndrome
[US National Heart, Lung, and Blood Institute]
http://www.nhlbi.nih.gov/health/dci/Diseases/mar/mar_whatis.html
Short overview including causes, who is at risk, diagnosis, treatments, living with, and links

Marfan Syndrome (Mayo Clinic)
http://www.mayoclinic.com/health/marfan-syndrome/DS00540
Overview with info on Signs and symptoms,Causes, Risk
factors When to seek medical advice , Screening and
diagnosis, Complications , Treatment , Prevention , Self
care ,Coping skills

Genetics Home Reference - Marfan Syndrome
http://ghr.nlm.nih.gov/condition=marfansyndrome
General info on genes responsible for this syndrome, and links
to treatment and additional info (for both health care
professionals and consumers)


Other Web Directories that may contain good info on Marfan
Syndrome
--NetWellness http://netwellness.org/
"highest quality health information and education services created and evaluated by faculty of our partner universities. "
Has an "Ask an expert" link
http://netwellness.org/healthtopics/help/aaehelp.cfm

--NOAH (New York Online Access to Health)
http://www.noah-health.org/
"NOAH provides access to high quality full-text consumer health information in English and Spanish that is accurate, timely, relevant and unbiased. " Started at the NY Public libraries

Also, not everything is on the Internet!
Don't discount libraries for books and databases (indexes) which
may contain full text articles not avialble on the internet.
Your public library may have access to databases as InfoTrac,
Academic Search Premier, and Health Source...just ask a reference librarian to get you started.

Most (if not all) public supported academic and medical libraries
are open to "walk ins"...Call ahead to see what resources they have. Any reputable medical librarian can get you started.
A few databases they may subscribe to included MD Consult,
UpToDate, Access Medicine, StatRef, Medline (with some links to full text medical articles).

Hoping I didn't overload you....
and at least one of the websites above is useful.

Janice
part time medical librarian at the local medical college (affiliated with a hospital)

Answer 2

1

Answer 3

www.medscape.com