Anybody have any resources regarding Celiac Disease?

Question

My eleven year old daughter, who is also a type I diabetic, is having a biopsy to see if she has Celiac Disease. I am a worried mom looking for anyone who might have any resource ideas regarding this disease.

Answer 1

www.celiac.com If you scroll down the front page there is a support group link as well.

Answer 2

I second the answer mentioning the message board on www.celiac.com . The direct link is www.glutenfreeforum.com . There are over 11,000 registered members, and lots of people with kids who have celiac.

There is also another board at www.celiacforums.com

R.O.C.K. (Raising Our Celiac Kids) is a support group for parents and kids. Some areas have local chapters - http://www.celiac.com/st_prod.html?p_prodid=649&p_catid=8&sid=91hH9H1VV7qdDnt-10106471520.97

Here are some links to a couple books as well -

http://www.amazon.com/Kids-Celiac-Disease-Gluten-Free-Children/dp/1890627216/ref=pd_sim_b_2/002-8535495-7930438

http://www.amazon.com/GF-Kid-Celiac-Disease-Survival/dp/1890627690/ref=pd_sim_b_5/002-8535495-7930438

I hope your daughter starts feeling better soon.

Nancy

Answer 3

Coeliac disease or celiac disease is an autoimmune disorder of the small bowel that occurs in genetically predisposed individuals in all age groups after early infancy. Symptoms may include diarrhoea, failure to thrive (in children) and fatigue, but these may be absent and associated symptoms in all other organ systems have been described. It affects approximately 1% of Caucasian populations, though it is significantly underdiagnosed. A growing portion of diagnoses are being made in asymptomatic persons as a result of increasing screening.[1]

Coeliac disease is caused by an abnormal reaction to gliadin, a gluten protein found in wheat (and similar proteins of the tribe Triticeae which includes other cultivars such as barley and rye). Upon exposure to gliadin, the body's immune system cross-reacts with the enzyme tissue transglutaminase, causing an inflammatory reaction that leads to flattening of the lining the small intestine, which interferes with the absorption of nutrients. The only effective treatment is a diet, lifelong in principle, from which gluten is absent.

This condition has several other names, including: cœliac disease (with ligature), c(o)eliac sprue, non-tropical sprue, endemic sprue, gluten enteropathy or gluten-sensitive enteropathy, and gluten intolerance. The term coeliac derives from the Greek κοιλια (koilia, abdomen), and was introduced in the 19th century in a translation of what is generally regarded as an ancient Greek description of the disease by Aretaeus of Cappadocia

http://en.wikipedia.org/wiki/Celiac_Disease

Answer 4

Hi
you can contact me at [e-mail]
to answer what is in your mind
however this might be a useful link
http://www.answers.com/celiac%20disease

Answer 5

i've attached some links below, hope they help inform u and don't make it worse.
big cyber-hug 4 ur daughter.

Answer 6

www.webmd.com