My 7 year old daughter has Stickler's Syndrome, and has become blind in one eye due to recurring retinal detachment. She said the other day that she feels like the only girl who "deals with blindness". She's bright, beautiful, love kittens, ballet, and horses, and is an extraordinary individual. There is no support group in our rural area, but she'd like to "talk" to someone else who deals with these issues. I'd love to have a young girl (whose parents will read the e-mail as I will read my daughter's), but she said she'd also like to talk to anyone. Someone older who has some experiences to share would be great as well. Would anyone like to volunteer, or does anyone know of a site where I could go to FIND a penpal or online friend for her?
2006-11-01 02:54:55 · 4 answers · asked by Katie Short, Atheati Princess 6 in Health ➔ Diseases & Conditions ➔ Other - Diseases
I have a 7 year old daughter who doesn't have Stickler's Syndrome but she is a very loving and kind girl. She is at school right now but I'm certain she would love the idea of having your daughter for a friend. She's frequently asking if she can talk with someone on the computer. She is mature for her age and doesn't really mesh with most of the kids at school. And knowing my daughter ... she will want to look up Stickler's Syndrome and probably want to hold a lemonade stand to earn money for a cure. That's the type of child she is. Her name is Olivia and our e-mail address is nannyshae@sbcglobal.net. We live in a rural area in Illinois. We have cows next door. :) I won't say anything to her unless I hear from you first. So... let me know and maybe our daughters can become great friends. May God bless you and your family!
2006-11-01 03:24:56 · answer #1 · answered by Anonymous · 3⤊ 0⤋
i comprehend a buddy who has an same component. yet shes too a lot of an @ss to annoy emailing peopl = sorry. yet im particular there might want to be persons? or an organizaion you are able to relate with and connect. good luck :D
2016-12-05 10:25:43 · answer #2 · answered by ? 4 · 0⤊ 0⤋
penpalworld.com will help you find someone her age and maybe someone who has this experiences and it is free.
2006-11-01 02:59:26 · answer #3 · answered by Melissa C 5 · 3⤊ 0⤋
Then why didn't u e-mail me as u said u would ?
2006-11-03 15:15:12 · answer #4 · answered by Anonymous · 0⤊ 6⤋