Yup. Except I got ill at 14 and have never been able to work. I lost most of my friends when I left school and I couldn't party like them. Since then, when I meet someone new, they put up with my illness for a while and then just disappear.
How do I deal? Well my family are supportive, especially my mum. Mostly, I don't deal very well. Some days I wake up and look out the window and smile like I am about to think something nice. Then from nowhere I think (and happily) today would be a good day to die.
It is very hard. I try to focus on something I can do and make it my life. Sadly, now I have lost, or never gained, the social skills to live in the real world and so I stay in my bubble as much as I can.
I'm sorry, but I don't think there is an answer to your question. People say focus on the good things. But what if there is nothing good? Those people are the same people that would walk away from a friend with an illness like that. I know that because you can never understand what it is like until you are there; when you can't see the bright side to look on.
I wish you all the best. If you ever find out the answer, let me know.
2006-10-30 12:42:58
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answer #1
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answered by nobodies36 3
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Life is what you make it. I have MS and can no longer work. At first I thought I would go crazy. I thought we would starve without my income and also I missed my friends and my work. Now two years later, I have found things to replace work. We get by just fine on my husbands income - makes me wonder why I thought I had to work all those years. I think I must have spent most of my income just maintaining work. My car, insurance, clothes, lunches, gas, take out meals, etc. Without all that to pay, we still have almost the same income. My family is very supportive and they call and visit a lot. I got a dog. That sounds simple, but I always wanted a dog, but did not think it was fair to have a pet and be away from home all the time at work. So now that I am home all day, I have a dog and she is my constant companion and brings me all kind of joy every day. I volunteer to make calls for politicians and non-profits fundraisers in my town. I cook healthy meals for my husband and myself every day. I sell on Ebay and that takes a lot of my time and brings in some extra income. I grow herbs in pots on the porch and make herb vinegar and oils for gifts to my friends and relatives. The days when I cannot walk so good, I read and crochet. I make afghans for gifts and to sell on Ebay.
Like I said in the beginning, Life is what you make it. If you want to be miserable, you will no matter what and it you chose to be happy, you can find something to be happy about. I hope you chose happiness. For everything that gets taken away, you can find something better. Good luck.
2006-10-30 20:44:48
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answer #2
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answered by nesmith52 5
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yes, I have several, lymphedema, lupus, fibromyalgia, high blood pressure, chronic fatigue, and more. I lost alot of friends because I couldn't do things with them after work and then even work became too hard, I was missing time, had to quit and go on disability. I lose my identity and didn't want to stop working, nor did I want to be on disability but I realized quality of life is much more important and that job will be there long after I'm not. I found other things to busy myself, I joined a support group and then later made my own group, I help people with the same condition I have to get treatment and things they need. You make new friends and learn alot on the journey. It's a little hard to accept and adjust but it happens.
2006-10-31 00:55:39
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answer #3
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answered by Tina of Lymphland.com 6
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