Anybody out there have Multiple Sclerosis?

Question

I was recently diagnosed with Multiple Sclerosis. I lost the ability and feeling in my right side for about a week. I still can't write very well but it's a little better every day. They treated the flare up with steriods for five days through an IV. The day after I was done with the treatment I got so sick I ended up back in the hospital. My skin got red and inflammed and started peeling, my blood pressure and temperature dropped, and my neck and back were so stiff I could barely move. Has anybody else had a negative reaction to the steriod Solumedrol? What should I expect next time?

Answer 1

Hi Melissa

Here are some tips to help the healing process.

Quick Action Plan for Miltiple Sclerosis


1. A healthy diet is essential for dealing successfully with MS. Emphasize a diet that is low in saturated fats and abundant in essential fatty acids. Eat plenty of fresh, organic fruits and vegetables, oily fish, free-range poultry, and olive, flaxseed, safflower, and sunflower oils. Organic nuts and seeds, millet, mung beans, and mung bean sprouts are also recommended.

2. Avoid alcohol, chocolate, dairy products, eggs, fast and commercially prepared foods, fermented foods, hydrogenated oils and solid fats, margarine, red meats, salt, shellfish, sugar, and yeast, as well as hydrolyzed vegetable proteins and food additives and preservatives.

3. For additional benefit, supplement with four to ten teaspoons of unsaturated oils each day.

4. Recommended nutritional supplements for MS include B complex vitamins, vitamin B2, vitamin B3, vitamin B6, vitamin B12, beta carotene and other carotenoids, bioflavonoids, vitamin C, vitamin D, vitamin E, calcium AEP, magnesium, selenium, and zinc.

5. Other useful supplements include alpha lipoic acid, CoQ10, DMSO, MSM, and the amino acids carnitine, choline, cysteine, glutathione, and methionine.

6. Test for and eliminate all foods and environmental factors that can cause allergies and sensitivities.

7. To reduce the burden of toxins in your body, consider a program of detoxification therapy, ideally under the supervision of your physician.

8. If you have mercury-containing dental amalgam fillings, have them removed and replaced with new fillings made from materials with which you are biocompatible.

9. Avoid exposure to unhealthy electromagnetic fields (EMFs) caused by electricity flowing through the coils of electrical wires and common home and office appliances and equipment, as well as cell phones and many types of motors. To protect yourself from unhealthy EMFs, consider wearing a Teslar watch and receiving weak pulsed magnet therapy.

10. Be sure to minimize your stress levels using mind/body medicine techniques such as biofeedback, guided imagery and visualization, hypnosis, meditation, and relaxation exercises such as deep breathing.

11. A restful nap each day can also help reduce your MS symptoms.

12. Regularly engage in an exercise program of gentle aerobics or walking to keep your muscles toned and supple.

13. To increase oxygenation of tissues and to stimulate the repair of myelin, consider hyperbaric

Best of health to you.

Cheers

Answer 2

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Answer 3

I was dx'd with MS on my 27th birthday, 4 years ago, but my Dr's think I have actively had MS since I was 12.

It sounds to me that you are allergic to Solu-Medrol, have they told you this? If you are allergic their should not be a next time for the Solu-Medrol. Now, have they put you on any of the other disease modifying drugs; i.e., Avonex, Betaseron, Copaxone or Rebif? I am currently taking Betaseron, and due to slight progression (I've had the disease for almost 20 years so some progression is going to happen) I also take Imuran. Imuran is a chemotherapy drug that until recently was only used to prevent organ transplantation failure.

Ok, I know this is way to much information so I will give you a ton of websites, and if you are ever inundated or find it quite daunting to look things up go ahead and contact me through my Yahoo! Answers profile.

Answer 4

I also have MS and used prednisone many times. The gal Kristie that posted above me gave you a great description. You also may have more acne, be extremely irritable, have what they call a moon face. Rest assured it usually goes away as you wean off of the med. Call your doc if you get really concerned or start having heart pains. MS is a sucky disease to have. Take one day at a time and try and get on one of the MS drugs right away. I waited 10 years and believe I would be in much better condition had i started right away. Now I use Tysabri and it is great stuff. Good Luck.

Answer 5

Hi. I looked up this drug for you and wow, you really had a bad reaction! Some of what you said only happens with high dose, or long term use.... check it out, WebMD.. (i would copy and paste but i dont want to leave you a novel).

My husband was recently diagnosed as well, and will be starting medication very soon... I'll probably be back here asking questions about him and what i can do to help! I wish you well.. best of luck, and I really hope you feel better soon.. sorry this isnt much of an answer. But maybe you can read up on some other drugs that your doctors will try, and hopefully they help you not make you worse!!!

Answer 6

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Answer 7

Melissa

The best souce of anwers, and discussions with others who have been diagnosed with ms is a new web site, msrefugees.com. It's a site created by folkds with MS and now have over 900 members.

Good Luck