am sixteen years old and was "diagnosed" with RSD when I was nine. I've never met anyone who has RSD let alone knows what it is. Whenever I talk to someone about it, I almost feel embarresed because its like they dont think its real. I'll never forget the pain I felt when my own pediatrition suggested I was "making up" the pain. I had to give up my roller skating dreams because of what should of been a simple sprain. I feel like no one out there even cares. My own dad seems to doubt the reality of my pain. I was on crutches for a year, and then in a wheelchair for eight months before anyone could even tell me what was wrong. When I finally did get the verdict I was only nine so I really didnt even understand any more than I believe the doctors did. I've had three nerve block catheders and they seem to of helped. I really just want to be normal.
2006-10-24 19:25:32 · 5 answers · asked by Emily 2 in Health ➔ Other - Health
I work for a doctor that treats RSD. I see people daily with it and I know it is not fun. It can be managed, but you need to find a good doctor that knows about it. check out our website
piedmontpmr.com
Tell your doctor to check out our website and if he wants, he can probably contact my doctor for advice on how to treat your condition. I know some doctors do that. Hope you are doing well and I will keep you in my prayers.
2006-10-25 13:18:48 · answer #1 · answered by momma2more 3 · 0⤊ 0⤋
Hi Becca, I do not have RSD but I sure know what you mean by people not believing in what you say. It is very disheartening. You know what would help, maybe you can set up a site in which you can inform people more about RSD (because I know I would like to know more about it ) - I know it is easier said than done and you are probably thinking - how would this person know? as I have never experienced RSD before.) Inform people of RSD. There is such little definition on what 'normal' is that even 'nomal' people are considered weird. There is no such thing as 'normal' because everyone defines normal in different ways.
2006-10-25 02:47:39 · answer #2 · answered by Sabre 2 · 0⤊ 0⤋
I can't even begin to imagine what you are going through but, I do know what it's like not to have someone to talk to when you are having problems. Here is a website I listed below that should help you out so you can actually HAVE someone to talk to and maybe not feel like that you are alone in all of this. Take care and best of luck to you.
2006-10-25 02:40:08 · answer #3 · answered by thalterman 3 · 0⤊ 0⤋
Ask if they can give you trigger point injection as they reduce the level of pain and it helpped me walk again. Still had pain yet not as much! OK?
2006-10-25 02:29:13 · answer #4 · answered by Anonymous · 0⤊ 0⤋
http://rsdtherapy.com/?src=overture
2006-10-25 02:43:53 · answer #5 · answered by Anonymous · 0⤊ 0⤋