chronic fatigue syndrome/m e?

Question

My husband has been diagnosed with this and we would love to hear from other people with this .no wise cracks .it can ruin your life syle

Answer 1

It's really tough and they don't really know why people get it or how to treat it effectively. I have it and just getting my normal daily stuff done is sometimes a struggle as I can have good or bad days. Sometimes antidepressants help by raising serotonin levels in the brain, but not all will respond and not all meds will work. I went through 3 before one that helped (still tired, but not as bad).

Answer 2

I've been battling Chronic Fatigue Syndrome for 4 years now and when I got this system I was probably at the lowest point of my life. I had no energy at all and was in constant pain. I hated myself and hated the doctors who all shrugged it off and told me I just needed to take it easy or that I simply needed to have proper sleep!

This have completely changed my life. Barely 3 weeks on this system, and my brain fog and headaches are gone completely! I can now also manage to go for a 20 minute brisk walk without feeling exhausted.

Free Yourself From CFS, Naturally!

Answer 3

Its very difficult for both of you. The best way I managed to deal with it is to keep positive, easier said than done, but is so important. I had hypnotherapy which helped so much with that aspect of it, I also found that acupuncture and homeopathic medicine worked very well. I was so sceptical at first but just very desperate and am so glad I did! It is important to have good relations with your "healers" because it is a very rough ride so if you don't like them, go elsewhere...I cant stress that enough. Ignore the things that people say about it, it is still not totally accepted and a lot of people will be telling him to 'get up and out' and similar but the most important thing is to GO AT YOUR OWN PACE!! Don't do anything you don't feel you can and make sure the recovery time is worth the activity. Until it is gone you just have to manage it and live with it.

I finally got rid of it by spending time in the caribbean, the sun and the pace of life is ideal and I now feel so much better there are also good deals available at the right itme of year so if you can, do!

Answer 4

My friend was diagnosed with M E a few years ago and has been referred to a specialist at the local hospital. She attends meetings locally too , where people can get advice from specialists and finds it beneficial to talk to other sufferers on how they manage the illness.
M E can lead to depression so it is important to get expert help. Any local hospital will have details of groups in the area.If you look on any search site for M E....Chronic Fatigue Syndrome ...and you will find lots of sites available. Good luck and take care .

Answer 5

CFS. Incredibly difficult to deal with from the person who has to deal with the condition. Sometimes harder for the partner who has to deal with a drastically different significant other and having to deal with the questions from friends and family. The list goes on. Prepare to deal with with a dubious medical community, although it is recognized by the centers for disease control in the U.S. The condition has fallen under many different names over the years. Too many to list here. There are no known "cures." Many doctors will prescribe numerous medications to alleviate the fatigue. Please don't fall into this. It will create additional problems. On a personal note. I was diagnosed after numerous tests by many doctors that I had cfs. This was over 13 years ago. Since then I have undergone countless tests and numerous procedures to alleviate the bone numbing fatigue and associated conditions that come along with cfs. I would like to add at this point that I underwent brain surgery, yes, full blown brain surgery to help alleviate the "pressure" that not just one but rather three neurologists felt might be causing the fatigue. After healing from this it was found that my condition had worsened.
To this day I still suffer from this medical mystery. Day to day, I simply try to do what I can and try to look forward to a brighter future.

Answer 6

I don't have it - but lots of theories about it. some think it's a type of anaemia. Other theories are that it's an immune disease the bodies immune system attacking the nervous system and so on.Watch his diet and environmental factors - there must be a cause - did something change in his life when he first became symptomatic. Autoimmune disease can be triggered by stress - like moving house. Unfortunately, not much in the way of treatment at the moment that I know of - but search the net - research is being done all the time.

Answer 7

There is a great book called, "Going Against the Grain", that addresses this, as well as other problems. This book talks about wheat and how it can affect people. My mother who has had this as a chronic, but on and off thing (as well as headaches, auras, rashes, diarreha, etc.) for many years, was feeling terrible. Just a couple days ago, she just tried what the book states (no wheat products) and is feeling so much better. She was feeling: confused, fatigued, lethargic, irritable, unable to cope, etc. Her neck stiffness and pain is also resolving. I hope this continues, but I think the book is well worth looking into. You will need to lay off caffiene, too.

Answer 8

I have had it for over 20 years and it does ruin your life. Because of it I will never have children and will probably never marry.I can't work.I can't do the things that other people do because it exhausts me so.I feel like I'm in a very deep hole and it's getting deeper all the time and there's no way out.It's horrible and I am so sorry that your husband has it.You just have to do the best you can.Try to eat a healthy diet,try vitamins,herbal remedies.Get enough sleep,even though you may have insomnia(I do).Read everything you can on it .Some people do recover.I will pray that you are one of them.

Answer 9

I would make sure that CFS is the right diagnosis, and definitely get a second opinion. Many times other physical issues are to blame, such as problems with the liver and/or kidneys, which are not normally tested for in blood work exams. This can lead to symptoms like CFS. The reason the liver and kidneys are so important is that they are responsible for immunity and blood quality.

Its important to exercise and eat right. Drinking, smoking and certain medications can cause these problems. Take an inventory of alcohol consumption, tobacco use and any common medications like Advil which are liver toxic. Know that even though you might stop consuming these things, it takes months for your liver to recover.

Answer 10

Hi. Sorry about your husbands diagnosis. Maybe he needs a more effective vitamin. I use VIBE, which is a liquid vitamin/mineral/antioxidant and it has worked wonders for my fatigue. I purchase VIBE through the internet at http://www.enivamembers.com/188138

It comes in two flavors: Berry Vibe or Apple Vibe

All you have to do is take one ounce mixed in any type of juice in the morning with breakfast. After a couple of weeks you can increase your dose to two ounces daily, one in the morning, one at lunch. I assure you it will help your husband with any fatigue he may be feeling and is completely natural, no artificial colors or preservatives.

Hope he gets well.