I have had a positive ANA and have many symptoms of Lupus?

Question

I have been diagnosed with Fibromyalgia for 10 years, but from alot of research on the net I feel it has been Lupus not Fibro I suffer from. I have mouth and nose lesions, Asthma (breathing problems) after no problems for 25 years, big time fatigue, and several forms of Arthritis and joint pain. I can not stay out in the sun, last 3 years I get sick and rash, depression. Are their people out there that are simular to me that FINALLY got the correct diagnosis.

Answer 1

Well, your situation sounds alot like mine. It took many years to get the diagnosis of Lupus and APS for me. Many years of rashes, pain, fatigue, positive ANAs, leisions...you name it. They told me fibro before this (even though I didn't have remotely enough of the trigger points) and even depression. Ha - if they only knew it was all Lupus and APS.

What helped me is I started taking pictures of my rashes and skin color changes. You could plainly see Livedo and my malar rashes...but together with my clotting history and blood work...well they finally started taking notice.

Keep pushing and see another rheumatologist if you need it. Good Luck!

Answer 2

I started suffering at age 8. Swelling joints muscle pain fatigue. At age 12 asthma arthritis sunsickness and epilepsy. I have had so many diagnoses until my mind was getting sick with doctors who could not admit that they just did not know.at age 22 i started geting the rashes and depression . I am now 48 and 10 years ago i was diagnosed with lupas. finally i was getting taken seriously instead of like a hypochondriac. Now i find out i have what is called mixed connective tissue disorder. it is a big name for lupas plus more connetive tissue diseases. I had my first positive ana 10 years ago and only then did i find out that some people never test positive even if they have lupas. the other tests like the sed rate and such should have told the doctors what i had. it is frustrating but what can we do but keep on fighting. if you need support there are great online support groups.

Answer 3

An increased ANA would be indicative of many different sicknesses, now not simply Lupus. It would need to do with Rheumatoid Arthritis, mono, sjogren's syndrome, or scleroderma. You point out that you simply continuously have bloodless arms; it would additionally point out Raynaud's syndrome - increased ANA would point out Raynaud's, as good because the bloodless arms. However, proper now, you're almost always high-quality to look forward to your health care provider's reaction, and to peer whether or not or now not you get a constructive titre from the lupus scan. It can take a at the same time to diagnose it, so be sufferer. Also, you don't point out whether or not or now not you are taking cure - steriods can falsely carry ANA assessments, and so can penicillin, tetracyclines or every other drugs. I am sorry to your loss. I might almost always wait till I knew what used to be happening with my possess frame, despite the fact that, earlier than attempting once more. Being pregnant is like coaching for a marathon - it's killer to your frame, and also you desire to be for your high-quality situation feasible. Good good fortune to you.

Answer 4

sounds like hepatitis c to me!!!!! i would have the doctor run an antibody test as what you've said reminds me of those infected with hepatitis c.

i suffered for almost 30 years before being diagnosed! i was soooo glad it had a name besides "loser, lazy" ect....

i had always known i was different than my friends. i only have one close friend who has stuck beside me all these years.

all the symptoms you describe sounds like hepatitis c.

they have to test your antibody levels because sometimes with hepatitis c, your alt and ast levels appear normal.

I too was tested for lupus, ms.....many more. They tried to say i was simply depressed! (I know that it's impossible to be depressed without having SOMETHING causing it!)

good luck and keep me posted!
HUGS!
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