Please help me! I've suffered this "strange" skin affliction on and off for many years. I accidently happened across the condition Morgellons disease about two months ago looking for something totally unrelated. Everything fits perfectly down to the smallest detail of symptoms and progression. My doctor and dermitoligists have had no answers + various treatments helped my skin somewhat but never completely eliminated the condition. Close friends + family assume I am addicted to drugs, developing an obsesive compulsive disorder or going insane. I'm scared but releived that I can now take a proactive role. I have 5 kids + am VERY concerned with thier health + my ability to function as a parent. I am becoming increasingly distracted + reclusive. I am seeking information and forums to share and discuss this condition with others with knowledge pertaining to this disease from either personal or professional experience. PLEASE help me find the BEST links for unbiased, useful information.
2006-09-26 08:24:27 · 5 answers · asked by Liz S 2 in Health ➔ Other - Health
There was an article in my newspaper about this disease yesterday. I think my mom has it. I typed in Morgellons into yahoo search and came up with a lot of sites. Wikipedia had some very useful info including names of authors who had written books (very current) about this and included the name of some drugs and treatments that have been successful. Also, www.morgelllons.org/morgmap.html was a good site, too. Dr. Randy Wymore is in Tulsa and has presented his research to the CDC in letter form in January 2006. The CDC has formed a task force this summer to start investigating this disease since it is not readily recognized by Doctors. The CDC started receiving calls about Morgellons a decade ago but doesn't have enough evidence to label Morgellons as a disease. This task force is made up of experts of infectuous diseases, mental health, toxicity and other disciplines. They hope to have some preliminary findings in a few months. Good luck to you!
2006-09-26 08:45:26 · answer #1 · answered by kksay 5 · 1⤊ 0⤋
You lack the liver, and neurological involvement that is a main component of this disease and you do not state any contacts with the infectious disease. Filaments would have been found in skin lesions as well.
2006-09-26 08:32:20 · answer #2 · answered by Anonymous · 0⤊ 0⤋
Hope this helps Welcome to our website The Morgellons Research Foundation (MRF) is a 501(c)3 non-profit organization, dedicated to conquering a newly emerging infectious disease, which we refer to as "Morgellons disease". The name, Morgellons disease, was used as a temporary label by the mother of a two-year-old boy who developed symptoms of this disease in 2001. In 2002, after establishing the MRF in honor of her child, this mother was contacted by people in all 50 states and across the globe, who reported symptoms of this disease. Most individuals with this disease report disturbing symptoms such as crawling, stinging and biting sensations, as well as non-healing skin lesions which are associated with highly unusual structures. These structures can be described as fiber-like or filamentous, and they are the most striking and least understood aspect of this disease. In addition, many sufferers also report symptoms of disabling fatigue, severe mental confusion, short term memory loss, joint pain, sharp decline in vision, and serious neurological disorders. The MRF is currently working with physicians, nurses, patients, and research scientists, to better understand the disease, and to increase public awareness. The MRF is also committed to raising the funds required to research this medical mystery, and has funded two university research scientists thus far. We believe that the current situation is grave, and necessitates an immediate national response for the following reasons: The cause and modes of transmission are unknown, therefore this disease may represent a serious public health threat to our nation. The optimal treatment for this disease has not yet been determined, although anti-microbial agents have been found to be useful in some cases. Most people with this illness report the inability to think or function normally, and many are now unable to work. In addition to the tremendous human suffering caused by this illness, it may soon place a huge financial burden on society, as many people with this disease are currently collecting social security disability, and many others are applying for it. The disease affects all age groups, including children, and some of these children are no longer able to attend school. The disease appears to be spreading at an alarming rate, especially in the state of California. (The number of self-reported cases of this disease has doubled in the past 6 months.) The number of families currently registered with the MRF is believed to represent a mere fraction of the true number of affected families. The disease is frequently misdiagnosed as Delusional Parasitosis. Sadly, patients are often dismissed by health care practitioners, and have difficulty receiving treatment for very serious physical ailments. More than one hundred doctors have contacted the MRF seeking treatment advice for patients, whom they believe have Morgellons disease. Research has been extremely limited due to lack of funding. The preliminary research that has been done at Oklahoma State University and the State University of New York, however, supports the theory that Morgellons is a newly emerging disease. See the Scientific Page: Information from Scientists for details. Additional fast-paced research is desperately needed to discover the cause of Morgellons disease, and to pinpoint optimal treatments for this disease. The goals of the Morgellons Research Foundation are to increase funding for research, and to find a cure for Morgellons disease.
2016-03-27 11:29:12 · answer #3 · answered by Anonymous · 0⤊ 0⤋
I am so sorry you have had trouble finding information about your condition. Here are some website I looked up for you. I hope they help. Good luck.
http://www.morgellons.org/
http://www.morgellons.org/kellett.html
http://en.wikipedia.org/wiki/Morgellons
http://www.healthsciences.okstate.edu/morgellons/
2006-09-26 08:37:55 · answer #4 · answered by LunaLou 2 · 0⤊ 0⤋
you want the best...
take wikipedia with a grain of salt.
moregellons.org is pretty much inactive.
http://www.morgellonsusa.com/ is top notch.
bottom line: it is spread by a tick or little bug (thripe)... so keep the kids away from your garden and anywhere there may be bugs.
2006-09-26 12:15:09 · answer #5 · answered by jake cigar™ is retired 7 · 0⤊ 0⤋