My best friend has a daughter that was born with mosaic chromosome 1 disorder. The disease is so rare, there is hardly any information about it anywhere. There are plenty of chromosome disorders, but all are different.
Can anyone provide any info that could help her out??
2006-09-14 17:35:41 · 1 answers · asked by LadyMagick 5 in Health ➔ Diseases & Conditions ➔ Other - Diseases
You are correct. This disorder is extremely rare and I'm afraid I am totally unfamiliar with it. However, I found a website at Rutgers University your best friend may be interested in:
http://compgen.rutgers.edu
They have a resource bulletin board that has links to websites for the National Organization for Rare Disorders and for the Unique & Rare Chromosome Disorder Support Group, just to mention two. Please pass this on to her and thanks.
2006-09-14 17:48:30 · answer #1 · answered by TweetyBird 7 · 0⤊ 0⤋