I have had lupus for three years, but I just started get treatment from a lupus specialist at Magee womens hospital. I take a small dose blood pressure medication. But my doctor wants me to take plaqunil and prednesone. But those drugs have so many side affects and I hear so many bad things about how they help one thing but then something else breaks down, Then you are on this cycle of adding on medicine after medicine. I want to live, but I don't want to lose my eyesight, have liver problems, or other complication caused by these medicines. I know their has to be a way of life change, or natural medicine that will help and have less or no side affects. I lived three years without medicine or help. But I do notice that I had more flares lately. I need to make a decision, I recieved my plaqunil in the mail a week ago, i need to decide if I am going to take or find something else that help to present to my doctor at my next appointment. I want to live but not taking alot of medicine
2006-09-08
16:10:21
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7 answers
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asked by
kenbfos
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in
Health
➔ Diseases & Conditions
➔ Other - Diseases
I've had lupus for sixteen years and the best thing I've found is Ambrotose. It's a glyco nutrient that promotes cell to cell communication while it builds your immune system. It's all natural and has no side effects. One of the things with lupus is it does take your hair out, but since I started taking Ambrotose my hair is thicker than ever; I actually had to cut it. I've been taking Ambrotose for almost seven years and I haven't had a flare up since, I can go out in the sun with no problems and for the first time in years my skin is clear. If you would like to check it out you can go to www.glycostory.com/teamval and for the more scientific aspect www.glycoscience.org, there you can look up the disease specific review. I hope you'll give it try it will help. Another thing you can do is eat more eggs, sardines, onions, garlic, alfalfa and yucca. If you would like to know more about the diet aspect you can e-mail me and I'll be more than happy to answer your questions.
2006-09-10 21:18:47
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answer #1
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answered by Anonymous
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My wife has lupus, and she takes plaquenil... Take it, it will help to prevent the flares, and the risk of side effects (eyes) are slim. she has been on it for 40 years... with no adverse effects... but you have to see an opthalmologist at least annually if you do.
The prednisone is to help heal and recover from your flares... The side effects are well publicized and are difficult to deal with (both for the taker, and the people surrounding her) not so much the physical but the mental things... mood swings etc... are tough. My wife ate more ice cream than any 10 people should have when on prednisone, too.
Do what your doctor tells you to do... your Rheumatologist is your best ally in this fight. He may know about herbal options.
Good luck, our thoughts are with you
2006-09-08 16:19:19
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answer #2
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answered by boj12345 2
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DHEA, Fish Oils, and Wobenzyme N have been tried and seem to help some people. Monavie juice has been helpful to a few.
Read the section on Rheumatoid Arthritis in Encyclopedia of Natural Medicine and Prescription for Natural Cures. The two diseases are similar and what helps RA may be useful in SLE.
2006-09-08 16:42:18
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answer #3
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answered by Mad Roy 6
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My 17 yr old daughter has Lupus and has had it since she was 11. She takes plaqunil and has for 6 yrs. and has been in remission for over a yr.. She has not gotten any side effects from this medicine. Please, take the advise of your Dr. because you can get alot worse. My daughter was so bad before she got on plaqunil that we had to dresses her, feed her, and take her to the bathroom. She could do nothing for herself. She now is doing about anything she wants. Good Luck.
2006-09-08 16:16:53
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answer #4
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answered by smiley 4
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Auto-immune diseases have been linked to estrogen dominance.
Look up some Dr. Catherine Rollins articles on Auto-Immune diseases and progesterone. Here is the "bottom line" from one...
If you're suffering from an autoimmune disease, you don't have to wait for all the academic research answers to come in. Bioidentical hormone replacement therapy (BHRT) at physiological doses is relatively safe, and, if nothing else has worked for you, it's an option you and your physician should consider exploring.
I can tell you which Bioidentical Progesterone Cream I prefer, if you would like a recommendation.
2006-09-08 18:25:06
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answer #5
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answered by A Healthier You 4
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two of the biggest things you can do that are not drug-related are to stay out of sunlight and to stay away from any unneeded stress. sunlight triggers lupus flareups - im not sure if it is the ultraviolet rays itself or the heat or what...but i know that sunlight/UV rays will trigger a lupus flareup. also, stress will cause flareups as well. if you can keep stress under control and you keep taking your medications, lupus can be relatively well controlled. if you are stressing about your illness (the lupus), maybe you should go and see a counselor or therapist who can help you to handle stress better - try meditation, yoga, deep breathing exercises, imaging exercises...all sorts of methods are available for relaxation. anyways hope this helps!
2006-09-08 16:26:23
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answer #6
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answered by stascia 4
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http://www.google.com/search?lr=&ie=UTF-8&oe=UTF-8&q=lupus
2006-09-08 16:13:39
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answer #7
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answered by Anonymous
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