I have asked on here at least 10 times about my son however this one I need to word differently to get help. My son is 15 mos old and has Atrial Septal Defect plus valve stenosis and Bicuspid valve. He sees a pediatric cardio. every scheduled visit which is every 6 months right now. Dr said that the situation right now is mild but probably will require surgery within a few years. This absolutely overwhelmes me. It takes over my life, my ability to let loose, have fun, be calm or relaxed, it affects my marriage because I never feel happy anymore. I feel like I am on a time table with my son who is the highlight of my life, who I think I would die if anything ever happened to, I am a basket case whenever normal baby things happen, like he lays his head down on things & I think this means he's tiring too easily, he had a high fever the other night & acted strange and I thought he was in heart failure, I am not coping well and have seen drs but I dont want to be medicated, please help
2006-09-06 07:46:26 · 11 answers · asked by Anonymous in Pregnancy & Parenting ➔ Toddler & Preschooler
Maybe you should see if there is a group you could join with people who are dealing with the same situation. That may help a bit. At least you could talk to people who are going through the same thing.
2006-09-06 07:49:01 · answer #1 · answered by Jen G 6 · 2⤊ 0⤋
I'm so sorry that your family is going through this, but I think it's important that you AND your child have a good life. if you spend all your time worrying- it's stressful on everyone. If you're only going every 6 months then his situation is probably not that bad so you may just need a little more education on his condition and what to really watch for... Maybe get a medical professional to spend some time with your family at home. Like a home health nurse, or something similar. That way they can help you see what's appropriate and what's excessive. Maybe see a counselor about your anxiety level. There are MANY MANY ways to help without drugs.
Remember- NONE of us are promised a tomorrow! We should all live life like there is no tomorrow so everyday is wonderful.
No one can tell you to stop worrying because that's your job as a mom, but you seriously need to find a way to destress- a meetup group is a super idea and especially if you can get into one for medical conditions similar to his.
I would rather have 1 day playing outdoors than 1 year in misery.
I know it's hard, but remember that every second we have is a blessing so spend it wisely. Good luck hon!
2006-09-06 08:10:07 · answer #2 · answered by sherdencutiepie 2 · 1⤊ 0⤋
I was born with a heart defect, I have Truncus Arterious and have through 2 heart operations and other operations relating to the heart trouble. Unfortunately, there is nothing you can do with your child but to monitor him, watch for unusual behavior and go to doctors if it's out of the ordinary. For you and your husband, try to live a normal life as possible, it may help to find a support group, but personally I don't know any for your particular dilemma. My parents tried to everything possible for me to lead a normal life and lead their own.
2006-09-06 17:15:46 · answer #3 · answered by Minot_1997 5 · 0⤊ 0⤋
i hope i will help. when my daughter was born she had acid reflux and was placed on a heart moniter.i lost her twice and they was able to bring her back.mericles do happen,atleast i believe in them.you have to stay possitive first and foremost.i know its hard to do but if you are under stress so is he.and even if you have the so called best doctor in the country get 2 ore 3 opinions about his condition .all doctors dont think alike.nothing sais you have to swith docs,but you have nothing to lose.and last but least ask,ask,ask,never be affraid to ask any questions.docs cant help if u dont ask.try to be as possitive as you can i know how hard it is but with technology today ure odds of losing him should stand for the better.i hope i have helped in some way.sorry about ure sons problems no child should have to suffer with any pain.
2006-09-06 08:27:39 · answer #4 · answered by Anonymous · 0⤊ 0⤋
I feel so saddened by what you are going through. I really don't have any words of wisdom for you. I am not even sure what to say. My heart goes out to you. I would suggest that you try to find message boards about his condition that way you can talk to other moms that are going through the same thing. I find just reading posts about people who actually understand the same thing very helpful.
I tried looking for you and this is what I found.......
http://www.medhelp.org/healthTopics/Regurgitation.html
My thoughts and prayers are with you.
2006-09-06 07:55:05 · answer #5 · answered by AB11 3 · 3⤊ 0⤋
I'm so sorry for you having to go through this. The other people who answered are right, you need a good support group. Try to find one in your area for parents of children going through medical problems. Someone at your Doctor's office or at the hospital should know. Also, do research as much as possible about his condition. I've heard that people feel empowered when they know as much as they can about their own or their child's medical condition. You really have to find a way to cope better, I know you know this, but it's really for the sake of your child. By being a "basket case" you are affecting your child and the person he is meant to be. He senses your stress and eventually it will start to scare him and could make him a quiet withdrawn child. Good Luck to you and your child and your whole family.
Try here:
http://www.carepages.com/CCPIntro?cpv=m1&extrefid=tlcyahoo9&OVRAW=Children's%20heart%20defects&OVKEY=heart%20defect&OVMTC=advanced
Or look at these:
http://search.yahoo.com/search?p=Support+groups+for+parents+of+children+with+heart+defects&prssweb=Search&ei=UTF-8&fr=slv1-&x=wrt
2006-09-06 08:03:54 · answer #6 · answered by nimo22 6 · 2⤊ 0⤋
Gosh- who could blame you for feeling this way? I think most of us would behave the way you do. Stop being so hard on yourself. Acknowledge your emotions rather than getting angry with yourself for experiencing them and simultaneously battling the panic. Fear is much less potent when you label it.
2006-09-08 19:27:07 · answer #7 · answered by obgyndoc 1 · 0⤊ 0⤋
Repeat this to yourself several times a day:
God grant me the serenity to accept the things I cannot change;
courage to change the things I can; and wisdom to know the difference.
2006-09-06 08:12:33 · answer #8 · answered by mom_of_ndm 5 · 1⤊ 0⤋
as a mom of a very sick 9 yr old since birth has been hard on me but you need to learn to live a normal life and let the kids leed normal lives or it will just be hell for all. Live for today and not tommorrow
2006-09-06 07:50:40 · answer #9 · answered by milkmaider2000 2 · 1⤊ 1⤋
Yeah! Bq: never Bq 2: i've never heard of a guy texting "xx", but if he does he probably likes you! Bq 3: edit
2016-03-27 00:27:26 · answer #10 · answered by ? 4 · 0⤊ 0⤋