Help with Fibromyalgia!!!!!!!!!?

Question

I have been dealing with this for about 6 years. It seems to be getting worse. I am only 29 and I feel horrible. I was told I had Lupus in my early 20s but now they are saying Fibromyalgia. My mom passed away in January at age 46 with an autoimmune disease. She was diagnosed as having Lupus in her early 20s also, but the last year she was alive they decided it was not Lupus. She had same symptoms as me but the later part they were worse. She remained active(Ballroom dance lessons, golf) She pushed herself hard to be active and not give in to the disease. She woke up one day and thought she had bronchitis. Tgree days later on oxyegen and died a little over a year later on high dosages of oxygen. They said that whatever autoimmune disease she had attacked her lungs. The doctors told me that I should not worry about the same thing happening to me. All I know is it is not normal to feel this way. Pain and faigue is bad right now. Any suggestions. I am so frustrad. HELP

I am so tired of always having something wrong. My husband has got to be frustrated too. I try to hide as much from him as I can. I also have 2 kids 2 and 6 and I want to be healthy for them.

Answer 1

Hi - I have Fibro too. I've had it for as long as I can remember, but I've had the diagnosis for over 10 years - I am 35. If your Mom died from an autoimmune disease, you should be checked for Lupus again. One of the good things about Fibro is that it can't kill us. It is not degenerative in any way... Have you looked into any support groups? I used one for a while and it really helped me. It's certainly a VERY difficult disease to deal with because it's invisible to others, they can't see our pain and fatigue. Like your Mom, I do my best to be active and I find that helps a lot too. Since I started taking Pilates and exercising fairly regularly, the pain has reduced some - it's not easy though, because as you know, one you have a flair it's almost impossible to move much less exercise. Here's what I suggest:
See another doctor, preferably a Rheumatologist to be re-tested for Lupus.
Try a support group
Slowly build activity into your days
I also would talk to your husband and kids about what you can and can't do. Sometimes it's hard, but after talking with a lot of my family, they are starting to understand that some days I can't do what everyone else does. Luckily I have a very supportive husband.

We do have a national association as well - I'm putting two links in here for you. Good luck.

Answer 2

Maggie, please contact me as I have some valuable information on how to lessen the effects of Fibromyalgia. I just recently sat through a lecture from Dr. Anthony Martin, author of "What your Doctor's Don't Know May Be Killing You"....and he has said he would not call what he has found "a cure", but he can definately say that he relieves the symptoms 100%. What he uses is an all-natural adaptogen which goes to work on all auto-immune disfunctions because it is full of phytonutrients, flavenoids as well as 4 natural polysaccharides. The results have proven to be truly amazing.

Answer 3

Three excellent books that discuss FM in some detail and offer good advice:
The Miracle of Magnesium - Dr Carolyn Dean
Encyclopedia of Natural Medicine - Murray & Pizzorno
Prescription for Natural Cures - Balch & Stengler
Some people have had some relief from drinking monavie juice.

Answer 4

I am so sorry to hear this. It sounds like your mother had Sarcoidosis an Auto immune that effects the lungs and causes severe fatigue. M.E and Fibromyaglia are also auto immune diseases with pain and severe fatigue symptoms. Auto immune disfunction is unfortunately hereditary. I have personal knowledge of these illnesses and would advise you to go see your Doctor or specialist with a diary of your symptoms. Please email me privately where I will be more than happy to give you further advice. [e-mail]

Answer 5

my mother has that its very rare


you should talk to a docter and ask

Fibromyalgia is hard to diagnose a doc found out by accident when my mother was having a routine check

good luck

Answer 6

I have it too was diaganosed in 2000. go to fibrohugs.com has loads of info and even a chat room where u can talk to others. if u want to email me at [e-mail]
am praying for u all.

Answer 7

try this site for info on Fibromyalgia. http://www.answers.com/fibromyalgia?gwp=11&ver=2.0.1.458&method=3

I'm so sorry to hear about the pain you must be in. I hope the doctors can figure something out for you soon!

Answer 8

Several therapies to try, chiropractic, massage therapy, occupational kinetics.

Answer 9

I'M SORRY ABOUT YOUR PAIN BECAUSE I KNOW HOW YOU FEEL. I ALSO HAVE FIBROMYALGIA SO I KNOW YOUR PAIN. IT IS PAIN YOU DON'T WISH ON NOBODY. I WILL KEEP YOU IN MY PRAYERS. FOR MY PAIN I JUST PRAY THE LORD TAKE IT AWAY.

Answer 10

Please read my testimonials on my site: glycoresource.com

And read the rest of my page.

God Bless :)