I have a 10 year old daughter with this painful disease.
I was wondering if anyone else has had anything to do with it or maybe any advice?
2006-09-04 14:26:11 · 6 answers · asked by Anonymous in Health ➔ Diseases & Conditions ➔ Other - Diseases
My 9 yr old was diagnosed with jra at 15 months old.Most important thing is to not let it get your little girl down!! Make sure she is taking her meds,has A good diet,and exercise every day.My daughter is on 5 different meds including 2 shots A week its not fun but in order 4 her to be healthy and mobile this is what it takes and so far we only have 7 joints infected,all lower body,No other infected joints since 1999.We keep our fingers crossed and pray every day that this disease stops spreading.
2006-09-04 14:38:17 · answer #1 · answered by alexismikeapril 2 · 0⤊ 0⤋
I am a teacher and have had a few students with it. One of the easiest suggestions would be those pillows or compresses that you can microwave and have some sort of mineral beads or some such inside. They hold heat and help to soothe pain, especially on cold days, or when writing. The last student I had used thses when taking the long standardized tests mandated by the Bush administration's NCLB act, and they helped him a lot. Try to get one, and then if they are helpful, meet with your child's teachers to make sure the use of these are listed in an IEP or 504 plan so they will be used as needed, especially in the testing. You can also look into having someone be a verbatim recorder for your child during these large tests.
2006-09-04 14:31:10 · answer #2 · answered by But why is the rum always gone? 6 · 0⤊ 0⤋
There are several patient/parent support groups out there. Try searching the web for them. Other parents also dealing with this disease would be your best source of support and information. Also, if your daughter is seeing a rhemuatologist ask him/her is they know of any local support groups.
2006-09-04 14:29:53 · answer #3 · answered by Erin S 4 · 0⤊ 0⤋
I am now 26, but I was diagnosed with JRA when I was 8 years old ...I would love to talk to you!! jackie_clapp@yahoo.com
2006-09-04 17:30:05 · answer #4 · answered by Anonymous · 0⤊ 0⤋
get her off milk. dont listen to the sh*t they tell you on tv. docters are PAID to tell you that milk is good for you. its actually really bad. i would explain it but im to lazy. so go to this site and look arround. its about a diet that has cured other diseases like chrons disease, obesity, and acne. im not sure if it will cure your daughters disease, but it will definatly help!
2006-09-04 14:33:29 · answer #5 · answered by kiss the cook 4 · 0⤊ 1⤋
i can answer any questions, feel free to email me at haseeb_khwaja3738@yahoo.com
2006-09-04 14:28:04 · answer #6 · answered by HK3738 7 · 0⤊ 0⤋